Hi I was first diagnosed with NLPHL in 1979 and have just completeded another bout of chemo after having a relaspe in 2016 What really gets me is the uncertainly of when I am going to relaspe again. Because of the rare nature of my disease the statistic are sketchy and all they can do extrapolate with Hodgkin when this is likely and work on German studies. This is really fustrating. I find the lack of info about NLPHL, even in this forum it's not meantioned and you have to search. I get lots of minor problems which usually end with me in a hospital and I end up explaining to the doctor who have never heard of NLPHL. Frustrating. i was reading Jax296 post and she was saying how tired she gets. I found that Healthwise is great for improving stamina and combating tiredness. For those who don't know it's run  in conjunction with the local authorities and referrals are made via your GP and is country wide. Anyway, apart form living with a time bomb I feel OK but would really like some more info