Hi Spagetts,

I am so sorry to hear about your diagnosis and the struggle you've had to come to terms with it. It is not at all unusual to go through a whole plethora of emotions. I am glad to hear that you have good support from your husband and boys. This makes all the difference to how you cope with everything.

I have had 2 bouts of breast cancer in the past 8 years. I took Tamoxifen after my lumpectomy and Letrozole for 6 years after my double mastectomy. I stopped taking these in July 2017. I have found the tiredness one of the hardest symptoms to overcome. Like you, I have always been very active, but I have had to accept my limitations

What tablets have you been given? Here's hoping that they do manage to reduce the speed of growth or better still, halt it.

You are definitely not alone. There are many here who are travelling the road you're on and we're all here to comfort and support one another.

Please keep in touch and let us know how you get on. We are always here for you.

Kind regards,

Jolamine xx

Hi jolamine,

lovely to hear from you and about your journey.

Im on Sunitinib and a number of other tablets to help with the side effects.

Ive learned not to expect too much of myself each day and to go with the flow as they say but it can equally frustrating too. I just need to work out how I can manage my day to day life around the medication. I am lucky to be able to work from home when I feel unwell or unable to drive(my office is 89 miles away). I can’t fault the help and support from family friends and Macmillan. 

I will I’ll let you know how things go and I hope you continue to do well also.

lots of love

jeanette xxx

Hi Jeanette,

If the tablets that you are taking for the nausea are not doing the trick, please let your care team know, as there are several different tablets. Some are more effective than others. I sincerely hope that you will be giving yourself time to recover rather than travelling the 89 miles to work. You are fortunate that you can work from home, but please be careful not to overdo it.

I know that it's fruustrating, but you really do have to listen to your body, if you don't want to set yourself further back.

I look forward to hearing how you get on.

Kind regards,

Jolamine xx

Hi I have just been reading your post, this sounds very similar to my moms diagnosis although surgery is not an option for her. Just curious if you struggled with a cough after it had spread to the lungs and if this cough eased up once you started on Sunitinib? 

My mom is coughing which is making her sick and some days struggles to talk without having a coughing fit. It is getting her down and I’m at a loss of what to suggest to her. Just hoping once she starts the Sunitinib treatments this will help.