Prostate Cancer in Massachusetts, USA

Good morning,

I was diagnosed Sept. 11th, 2018 with prostate cancer. I've been reading some of the posts on this forum and the general prostate cancer information from Cancer Research UK, and I find it much more comforting compared to the statistical babble on the web pages from the United States. So I hope you don't mind if I engage in some conversation and comfort here (even though i'm an ocean away). I've only shared my diagnosis with my wife and our best friend couple. I'm a very private person and my siblings would go completely overboard with their intrusion in my daily life.  I'm feeling very alone in my current situation.

My biopsy results have been submitted for genomic testing to determine how agressive the cancer is. Those results are still three weeks from coming back.  Currently it's a Gleason score of 6 but the PSA of 11 takes it to the T2 stage.

Thanks for letting me vent and get these feelings out. I know we are all dealing with very difficult situations or we wouldn't be on this forum. Please know that I'm thinking of you all.

Best,

Paul

  • Hi there and welcome ..

    Lovely to hear from you over the POND ... as far as I know, not being medically qualified ... there's good results comming from prostrate cancer, it has come a long way ... so hold on in there.. you can do this ..

    I know telling family is really hard .. but that's because they care .. I was like you at first, didn't want to let mine in, and spent a day on my own letting it sink in .. but when I did let them in, and they saw how strong I was, they all got on board .. after lots of tears from them, but once they knew I was coping, we all pulled together .. and they all got me through ... so when you feel stronger, I'd hope you can do that too .. 

    So your not alone on here... there's some amazing people I've got to know on here, that really know all those feelings you go through , coz we've been there ... so good luck on your journey ... it's a scary rollercoaster ... but hold on tight, there's lots of us on that ride with you ...

    Chrissie x

  • Hi Paul,

    I am glad that like myself, you find it of comfort and therapeutic to share your feelings with us all no matter where you are located.

    Please share your feelings as often as you like and keep posting, even if it is to have someone to talk and share with and about anything at all.
    I agree that sometimes you can get too much information and sometimes conflicting with statitics but overall I have found this site the most imformative, sensitve while being honest when asked.

    Its also therapeutic to share with others in similar circumstances.

    Keep posting Paul, knowing you are not alone and that there are other who care and share and comfort each other as well as sharing positive experiences. Difficult for some, but I have tried to remain positive and keep humor and that has helped both myself and family.

    Each has own story and way of dealing with but I wish you well and although words are easy, try and remain as positive as you possibly can as treatments now can be very sucessful.

    Whats Massachusetts like in USA..I used to fail that at school for spelling.same with Mississippi

    regards

    ian

     

     

     

  • Chrissie and Ian,

    Thank you both for reaching out to me. Yesterday, for some reason, was a particularly difficult day and the cancer weighed heavily on my mind. As you mentioned Chrissie, prostate cancer has excellent odds for complete recoveries. I am greatly encouraged by that and assumed that "active surveillance" would be how my cancer would be handled for the next several years. However, until that can be confirmed by the genomic testing, I don't feel i can let my guard down yet. This is also the reason I haven't been able to share my diagnosis with more loved ones yet. Until I have more answers about how we will address the cancer, I don't want to sound alarm bells just yet.

    Again, thank you for responding. The change in my outlook after reading your kind words was remarkable! Please let me know if I can ever return the favor.

    Ian, Massachusetts is lovely this time of year. Mild days and cool nights, the leaves have just started  turning colors. Tomorrow our entire neighborhood is coming to our home to press apples to make cider! It was a great sucess last year. As for the spelling, I couldn't master it until I moved here 34 years ago!

    Thanks all,

    Paul

  •  Hi Paul

     Good to hear from you and lovely to see you on our site....  The site that nobody really wants to join, although having found your way here, I hope you keep in touch. 

     I hope you are having a better day. Until you know the extent of your cancer and have got a treatment plan sorted, you will feel things are very out of control.  I know it sounds crazy but slowly you learn to accept the news and assimilate it into your daily life. 

     One of my friends was diagnosed with prostate cancer in September 2017. by Christmas 17 he  had been operated on, had radiotherapy and was up and about and continues to go from strength to strength.   There are no “good”  cancers to get but that certainly seems to be one of the most successfully treatable these days. So, hold on in there, you’ve got this!

     My husband and I have been to Boston on several occasions -  such a lovely city – we celebrated our 20th wedding anniversary in the park with the ducks.   And we have two wonderful holidays at Warren in Vermont and Kennebunkport, Maine.  Beautiful part of the world. 

     Anyway, I digress. Take care of yourself,  make sure you are getting plenty of rest and not worrying too much and know we are rooting for you. 

    Ruth x

  • SusanRuth,

    Thanks for your kind words. I understand what you mean about prostate cancer being one of the "better" cancers to get. However then you feel like you shouldn't complain as much.

    We love the Boston Public Garden too! Sandy and I have lived in New England for over 30 years. There's so much to do and you get the changing seasons as well. We live on the other end of MA, basically south of Warren, VT by about 3 hours.

    Thanks again for reaching out and for your encouragement. It has done wonders for my mood and my outlook!

    Best,

    Paul

  • Hi there ...

    It sounds magical in Massachusetts ... I've only been to Florida .. and it brings the kid out in me when I'm there ... 

    My favourite BeeGee song is Massachusetts. . My dream was to take a greyhound bus to go from one side of the U S   to the other .. just to see it all ... 

    Well I really hope you go from strength to strength. . .. and every cancer is hard to come to terms with .. there's loads of different cancers on here ... and to the person that has it... it still turns their world upside down ... and it's a trip into the unknown ... so give yourself a pat on the back... you are doing good .. 

    So take care .. you keep kicking cancers butt ... Chrissie x

  • Hi Paul,

    Hope you have a good  a good day and keep positive my friend.

    How did your apple stomping go?...as for entire neighborhood in your home !! you must have a ranch.

    Hope went well and that you enjoyed.

    Just thought I would pop in to say hello and let you know others are thinking of you.

    kind regards
    ian

  • Chrissie,

    Thanks again for your support. I've visited London and Edinburgh a number of times. I find them to be magical as well. Perhaps it's because I always go during the Fringe Festival!

    I'm still waiting on some test results, then a plan can be formulated. I really can not over state how much the support messages from you and Ian have helped.

    Best,

    Paul

  • Ian,

    The "apple stomping" went really well. We converted about 7 bushels of apples in to sweet cider. We had approximately 40 neighbors stop by to chop apples, crush and press them into cider. We had a barbeque picnic with neighbors bringing dishes to pass. Cancer did not cross my mind all day!

    Last night the sweet cider went into fermenters to become hard cider or as you might say, cider. We'll enjoy that in a few months as well as serving it at a neighborhood Cinco-de-Mayo party in May.

    Thank you again for your positive attitude and support.

    Best,

    Paul

  • Hi there ..

    Keep in touch .. always here when you need a shoulder to lean on ... or just a chat ..

    The cider sounds lovely ... I'll have a vertual glass with you when it's ready ... fingers crossed it goes good for you ... war all there with you on this scary journey  ...

    Chrissie