Oesophageal cancer, recent diagnosis

Hello, just to introduce myself, I am a 64 year old man, was diagnosed with stage 4 oesophageal cancer about 9 weeks ago and am about to undergo my 3rd cycle of 6 eox chemo. I was told this was palliative and, I guess like everyone else, am trying to find my feet and come to terms with this illness and my worrying prognosis. On the positive side two weeks after starting chemo I went from being unable to swallow any solids at all to eating a roast dinner and apparently this is a good sign. Apart from mild fatigue I feel pretty good considering. The care I am receiving at the oncology unit is outstanding but I am struggling with the psychological effects and fear for the future of my family. I will be very interested to read how others cope with this situation and hopefully will be able to offer support to others as things progress. Thank you

  • Hello Hammer6580

     Welcome to, as many people have said before me, the website nobody wants to join.  You will find a wealth of help and support from others in similar situations so you have done the right thing by joining. 

     So pleased to hear you are doing well with EOX  chemo. My husband  was diagnosed with oesophageal cancer August 2017 and having gone through some horrific, horrific operations and procedures was doing well until last week when a routine scan showed a return of the cancer. He is about to start his next round of treatment in the hopes that we can  slow the spread. 

     He amazes me every day because he is so bloody brave and philosophical. Its me who falls apart but together we will weather whatever storm comes our way. 

     Steve isn’t one for chat rooms and social media but I would love to keep in touch with you and I wish you so much love and luck in the coming weeks. 

    Ruth x

     

     

  • Hi Ruth thanks so much for the reply and sorry to get back to you so late. I caught a secondary infection after the last chemo and spent some time in hospital on i/v antibiotivs, and have been recovering since. I was offered the 'Ivor Lewis' op before my scan results came through, but I was stage 4 so the consultant decided it was not fair to put me through it with a good chance of the cancer returning. In a way I'm kind of glad about that. Such a blow to go through all that and have it return. I do hope the new round of treatment is effective. I hope you are managing to get some quality time and manage to love and laugh together now and again, one thing about this dreadful disease is it makes you appreciate your loved ones so much more, and the beautiful world we live in, and you 'stop sweating the small stuff'  I had my mid cycle scan today so will find out next week if the chemo is having a significant effect or not although it appears to be the case. Warm regards to Steve and yourself

    Andrew

  • Hello again

    Lovely to hear from you.  So sorry you've been in hospital - but glad you're out and fighting back! Have sent you a friend request so we can chat "off line"

    Take care

    Ruth x