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Chronic GVHD of the lungs

Benno
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Hi

i am suffering from chronic GVHD of the lungs following a stem call transplant in a January 2015. My respiratory consultant advises the condition could also be OB Obliterans Bronchiolitis. 

I am trying to find any specialist consultants in lung GVHD who could help me or indeed anyone with experience of this condition. 

Any advice would be appreciated on medication, treatments, diet, exercises etc etc

  • Welcome to the forum Benno although I'm sorry to read you are suffering from chronic GVHD of the lungs following a stem cell transplant in January 2015.

    We have some general information about GvHD on our website which you can have a look at by clicking here but our cancer nurses are just a phone call away if you'd like to chat to them about this. Their number is 0808 800 4040 and you can call them Monday - Friday between 9a.m - 5p.m. 

    I hope this helps and I wish you all the best in getting this treated.

    Kind regards, 

    Steph, Cancer Chat Moderator

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