New to forum & just started chemotherapy . Lacking in energy

Had PSA Of over 150 but after first chemotherapy dropped to around 12 . Realise the next session will show much more gradual PSA réduction . Lucky with side effects , my major issue is that I can’t get continuous sleep . Wake , urinate & then have extreme difficulty in returning to sleep. Feel fatigued & difficult to focus on doing thing except for normal activities such as cooking etc. Also have tri- monthly hormone and plus daily steroids 

Before starting treatment I was an active retiree , ideas for becoming more active greatly received 

  • Welcome to the Cancer Chat community Redbournite.

    It's great to see that your PSA dropped from over 150 all the way down to 12 after your first round of chemo although I'm sorry you're struggling with some of the side effects.

    We have some information on our website that includes tips on how to manage fatigue which I hope will prove useful but do let your doctor or medical team know if it's getting a bit much as they may be able to help. They will also be in the best position to advise on what exercise would be suitable for you at this moment in time so do have a chat with them when you can.

    We have a lot of members on the forum that have experienced the same side effects from their chemo and hopefully some of them will reply soon to offer their support and advice.

    All the best, 

    Steph, Cancer Chat Moderator

  •  

    Hi Redbournite,

    I was newly retired and fairly active prior to my 2 bouts of breast cancer. The first of these was 8 years ago.  I was totally exhausted after surgery and could fall asleep anywhere - something that I could never do beforehand. My hormone therapy caused havoc with my joints and I've ended up with Lymphoedema in both arms and had a double knee replacement 3 years ago.

    My level of activity reduced considerably following this. I wanted to get back to regular exercise but wasn't fit enough to join the class that I attended previously. I attended a pain clinic for a few months following my knee surgery and when my time there ended, they advised me to attend a strength and balance class for people with medical problems such as stroke, heart attack, cancer, etc. All of us in the class were referred by doctors and this entailed very gentle exercise at first.

    After 12 weeks I was referred to another class which is more taxing, but we all work within our personal limitations. I now attend 2 classes per week and find that I am at last feeling less fatigued than I was and I am also sleeping better.

    Have a word with your doctor. It might be worth getting a referral to something like my strength and balanve class.

    I hope that you can find something suitable near you and that it helps to reduce the pain.

    Please let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx