DCIS need Mastectomy and reconstruction

Hi 

I joined this forum today after a manic month where a routine mammogram in July found 4.5mm of DCIS. Only solution is a mastectomy but they’re going to reconstruct straight away. I’m choosing a diep flap but it’s not done at my local hospital so it’s yet another wait whilst they do the referral. 

It would be nice to hear from people who are going through or have gone through the same. The shock has worn off but The lack of sleep  is beginning to take it’s toll.

Thanks for reading x

  • [@Rosie80] Very best of luck tomorrow, will be thinking of you. X
  • Apparently he doesn't like touching healthy tissue, the chances of me getting cancer in the other breast are no higher than someone who's never got it. I'd prefer a double but it's not to be. It's the waiting is the hardest part. I couldn't tell you the last time I had a full nights sleep and looking at the times that a lot of ladies post on this forum I don't think I'm alone there. One more day and the waiting is over but it also marks day 1 of not looking like myself. But focusing on the glass half full, should be ok for Christmas and I've three kids so when I wake up Christmas morning I'm sure I'll feel happy. 

  • I found that no one ever replied on the Irish boards, now I've found I'm answering everyone cause I know how tough it is to put a question out there.

    if you got through chemo you'll get through anything. I'm 48, and I know quite a few who've been through this unfortunately, all ages. It's insane how common it is. I'd go for a double if I could, that way you can't get it again, or at least it's very unlikely. Like someone said, we'll always worry. X


  • Hi CCPT,

    Well, you are almost there. You will feel better once you have your op and start moving forward. I suppose that you can understand why surgeons don't want to remove healthy tissue. it makes sense, but I was more concerned with ensuring that I had got as much as possible away and fortunately, my surgeon was quite ameniable.

    Try not to think about looking different after the operation.  You will still be your beautiful self on the inside and, going through all of this will make you a much stronger individual in the long run. I am actually quite proud of my battle scars now and, I have plenty of them, believe you me.

    I hope that all goes well for you and, that you're fighting fit in time for Christmas morning with the family.
    kind regards,

    Jolamine xx

  • Hi Ladies

    [@CazStu]‍ ‍ [@Woollylamb][@Jolamine][@Suziewong][@CCPT]‍ 

    I'm home!!!!  I went into surgery at 9.36am yesterday morning and came home a couple of hours ago.  I am now sat in front of our log burner with our dogs at my feet feeling rather surreal about this whole journey so far.

    Everybody from a medical point of view have been amazing, the support here is just great and such a wealth of knowledge (albeit a bitter sweet fountain of knowledge) and my family terrific.

    Luckily the medication was brilliant and as of yet I have not had any pain at all but expect that to change a bit as the morphine drip obviously had to stay in the hospital!!!!  From all I have read here though the mastectomy is a lot less painful than the lumpectomy/lymph node removal was so hoping that is the case!!

    Off for a little snooze now but just wanted to thank you all for your good wishes.  I'll touch base again soon.

    Rosie x

  •  

    Hi Rosie,

    This is great news. Now, listen to your body and rest when and as you need to. Hopefully you won't miss the Morphine too much.

    I'm sure that you're glad to have your surgery behind you at last. Keep in touch.

    Kind regards,

    Jolamine xx

     

  • Yippee, glad to hear it went well and you are back home. That's brilliant. 
     

    Take it easy now and rest up. 
     

    wl

  • So delighted all went well for you Rosie80. Thank goodness medical care is so good now. We are blessed to have such fabulous surgeons who do this work. They are worth their weight in gold for sure. Take care of yourself. I am going in to see my surgeon tomorrow to see whether I'll be having a lumpectomy or masectomy. I'm ready to go for the masectomy if needs be. Just want to get this over and done with. We've all been through so much, emotionally and physically. Sending you hugs! xxx

  •  

    Hi Suziewong,

    You can do this! I hope that all goes well for you tomorrow.

    I shall be thinking of you and will have my fingers crossed for you.

    Kind regards,

    Jolamine xx

  • That's fantastic news! Another step taken!

    I had my op yesterday, was first down so no waiting. Was a tough day yesterday, found it pretty painful but feeling a bit better today already. I'm staying in for a few more days yet. One more test result to get before I'm in the clear but I'm feeling positive. Haven't looked at my new boob yet, not quite ready for that but I've lots of time!

    I really appreciate this forum and all the messages, comforting to speak to other ladies going through this. Thanks everyone! X