Hi all, I am a forty eight year old husband and father who first had symptoms late August 2017. Food began to get stuck in gullet and was brought back wrapped in thick mucus, had endoscopy x2 and diagnosed with hiatus hernia and barrets esophagus but after months of trips to doctors and hospital and losing weight for fun due to not being able to eat. My wife insisted we go private for consultation to speed up treatment. The initial thought was Achalasia but more tests required, consultant pushed us back on to the and we began another wait for barium swallow, manometry which led us to believe I had Achalasia. Consultant then asked his colleague to take a look at me as he suspected achalasia more time passed waiting for appointment to be told the second consultants not convinced about the diagnosis as you cannot have achalasia and a hiatus hernia. I had to go to see him for further endoscopy he could look inside himself. I was then finally kept in hospital having lost 4 1/2 stone since November 2017 until hospital appointment on 9/4/18. I was told I had a large tumour on 11/4/18. I then spent 8 weeks on a gastro ward being fed via tpn having been told that I had secondary cancer in left lung , I had suffered what felt like pneumonia at Christmas but had not sought treatment as they hadn't helped with the eating problems, we asked consultant if lung spots could be an infection and was told no absolutely not. I was t2/3 n1m1?. 7mdt meetings and my wife and daughter and other family members fighting for treatment, after 8 weeks ion gastro ward I was transferred to another hospital for open esophagectomy. This was to be followed by adjuvant chemo radiation and 4 months of chemo. Operation carried out and believed successful but histology showed cancer was in 8 local lymph nodes of 24 removed. Had planning pet ct scan some weeks later and then a phone call to tell me to ignore treatment letter as I needed to see oncologist again, two weeks later another bombshell it had now spread to liver and as such is now incurable. Starting eox chemo tomorrow to hopefully give me more time but no guarantees . Without wife and daughter and a palliative nurse begging for treatment I wouldn't be here now.
Love and best wishes to anyone suffering or affected by any form of cancer
Bunny69