Hi Everyone 

My Dad has recently been diagnosed with inoperable pancreatic cancer. I am devastated to say the least. 

With this horrible diagnosis I am wondering what the next steps on research and data gathering are at this point? Since his diagnosis, there has not been an investigation / or data gathering process performed by anyone - I’m very naive in this field but I’m sure that now would be a great time for my dad to enter his profile to research platform. A platform could capture all of the seemingly insignificant symptoms he has experienced over the years. He could enter his lifestyle habits, his diet, his cocktail of medicines... all of this I’m sure would be valuable to a research team (especially if this was scaled globally and every diagnosed patient in the world contributed their profile). Such as platform could also monitor treatment plans with outcomes monitored and compared based on very good and binary profiles uploaded by each person. All dietician recordings could be inputted by the patient and this would also provide great data to be used for research and also provide the patient with real-time advice on what to avoid or not to avoid. 

I think what im suggesting is the largest cancer research project in history whereby each diagnosed person contributes to the pool of data with their profile and in return gets automated assistance along the course of his / her treatment. Imagine a research project with the worlds diagnosed population instead of  just 2000 people. 

A software platfrom to gather data on a global scale to connect the researchers with patients.

Is anyone with me here? If there are any people on the know on this subject It would be great to hear

Thanks for reading, please reach out 

Ps - our medical files don’t currently hold the data in a way that can be easily crunched. They also don’t hold all of the granular detail that researchers may need.