Hi Dan 

Thanks for replying and how are you?

I had an appointment for the 19th Nov with urologist and just got a letter today and it is now 12th Mon.

You said about a biopsy but I get the impression they don't do them, but is that normal to have one done as I was told by the previous urology consultant that the kidney would be taken out or part of it.

I'm fed up, stressed and getting terrible anxiety, everything has been so slow.

I went for a ct scan for something else in July 18 asked about scan, told nothing, got a phone call on 24th Sep to say 'don't worry about wording in letter that said mass had been found'  but I never received the letter to this day.  Was sent for another ct scan, more detailed then the long wait, finally seen by a urologist who basically said it looks like a cancer, in the office with him for about 10min, told me i would be referred to another hospital as thats were the surgeons are, world turned upside down then back out the office door.  

You have had your operation did you have keyhole as im on your introductory page and typing from my phone, how soon did you have operation after seeing consultant. You said about being heavy was this a problem as I'm overweight and worried about operation.

How are your family dealing with everything and how is your little girl now that you have had the operation.

Sorry I'm asking a lot of questions.

Thank you for replying to me 

Shelly 

Hi Dan 

Thanks for replying and how are you?

I had an appointment for the 19th Nov with urologist and just got a letter today and it is now 12th Mon.

You said about a biopsy but I get the impression they don't do them, but is that normal to have one done as I was told by the previous urology consultant that the kidney would be taken out or part of it.

I'm fed up, stressed and getting terrible anxiety, everything has been so slow.

I went for a ct scan for something else in July 18 asked about scan, told nothing, got a phone call on 24th Sep to say 'don't worry about wording in letter that said mass had been found'  but I never received the letter to this day.  Was sent for another ct scan, more detailed then the long wait, finally seen by a urologist who basically said it looks like a cancer, in the office with him for about 10min, told me i would be referred to another hospital as thats were the surgeons are, world turned upside down then back out the office door.  

You have had your operation did you have keyhole as im on your introductory page and typing from my phone, how soon did you have operation after seeing consultant. You said about being heavy was this a problem as I'm overweight and worried about operation.

How are your family dealing with everything and how is your little girl now that you have had the operation.

Sorry I'm asking a lot of questions.

Thank you for replying to me 

Shelly 

Hi Shelly, 

No probs. 

The time line from the first x-ray to surgery is approximately 4.5 months. This was a very difficult time for all of us. Not knowing what is going to happen puts you constantly on edge. 

I saw my Surgeon / Consultant in the beginning of August and had surgery on the 16th October. 

How did you get on with your appointment on Monday? 

I had a biopsy done as my tumour was quite small so the consultant wanted to be 100% sure if it is malignant or not as he didn't want to remove a healthy kidney  (partial surgery was not an option became of the location of the mass).

I have had my kidney removed via keyhole surgery. Due to some complications the surgeon had to enlarge one incision from 5cm to 15cm. I also had breathing issues and high blood pressure right after the op. Apart from this recovery is going quite well now.

I hope to be able to return to work in a couple of weeks to get back to normality. I'm still anxious regarding re-curring cancer or secondary cancer. I also hope that the remaining kidney won't cause me any issues down the line. 

My wife and daughter have been great with helping me and giving moral support :) 

Best Wishes, 

Dan

Dan thank you so much for sharing your experience. I looked for information about kidney cancer and kidney removal when I was told I had a tumour on my left kidney in August this year.

At that time, reading about peoples experiences scared me so much that I stopped looking. My head is in a better place now and reading about your experience makes me realise it's good to talk.

It's been 4 weeks since my operation and I have to wait another 3 weeks before I have my follow up with the consultant. The morning after my operation my consultant came to see how I was getting on. He just said the op went well and he would see me in a few weeks. I'm assuming no immediate news is good news and if any further treatment was required I'd have been called back sooner.

4 weeks on and although my wounds appear to have healed well, my tummy is still distended on the left side and sore inside close to where the larger incision was made. My lower ribs and hip also ache. I'm doing my best not to worry that they've missed something but it's easier said than done until I know for sure.

Good luck with the rest of your recovery and good luck on your return to work

Hi Dan & Shelly I just got back from a months holiday

and read your posts. I had my right kidney removed in May along with a 14cm tumour. I was extremely lucky, the tumour turned out to be an oncocytoma which is benign. Six months on from the surgery which was keyhole I still have a bit of a bulge above the scar but apart from that am completely fit and well. I’m posting this because even two months after surgery I didn’t feel great. It can take a long time to recover from a big op but I’m sure you will get there. Wishing you all the best and hope you can be patient with yourselves.