Enlarged left tonsil & swollen lymph nodes in neck

Hi.

I’m new here but here goes. I’m almost 25 with 3 children & since about January, I’ve had what feels like bout after bout of what I assumed was tonsillitis. I’ve been to the doctors for it twice & was prescribed 2 courses of antibiotics twice too but nothing caused my tonsils to swell back down. Even in between my assumed bouts of tonsillitis, they never swelled back down either. I seemed to keep getting a sore throat on my right side, I think my right tonsil is slightly swollen but my left is definitely worse like maybe 3 or 4 times bigger. So this has been going on for a few months. In April, I got referred to the ENT department which was classed as a urgent referral but my appointment had been cancelled & I finally was seen last week on the 23 May, I assumed the whole appointment was to see whether or not I fulfil the criteria to finally get my tonsils removed but that didn’t even get mentioned. I explained to the consultant what had been going on for the last couple of months & he checked my tonsils & said they definitely swollen. He then wanted to put a camera up my nose which he did straight away & then said that my tissue behind my nose & everywhere seems really swollen. He then checked my neck & said he found 2 lumps & that he wanted to send me for a ultrasound there & then which he did. On the ultrasound, on my left side where my tonsil is extremely swollen, there seemed to be a massive lump that was pulsating. It looked massive on the screen & the radiologist were focused on it for a while compared to the other side & even brought a second radiologist in quoting he wants to get a second opinion whether these photos are okay. He then said they definitely swollen & I probably need to get them removed no matter what but no biopsy needs to be done just yet. Maybe it was to put my mind at ease I don’t know but when I got sent back to the consultant, he then wanted to send me for a urgent MRI on my neck within the next 2 weeks, he sent me off for 13 different blood tests & prescribed me with antibiotics for 2 weeks which so far is proving useless with the swelling. The consultant then arranged another appointment for 3 weeks time (15 June). The consultant never mentioned or talked about what he assumed it was or whatever but when I went for my blood tests doing, I had 3 sheets of paper with me of what they was testing for. In the clinical notes bit, it said Waldrye’s ring hypertrophy, cervical lymphadenopathy & he questioned whether I had a lymphoproferative disorder & what was the cause & I assumed they trying to find the cause of it with the blood tests (FBC, kidney & liver function, glandular fever, HIV, stuff like that). I researched those terms with google & found that they could possibly be investigating cancer. I know it could be amongst other things. I never got told this, I never asked. I feel stupid that I didn’t now but I was just in shock at the appointment. Anyway, the day after my consultant appointment, I received a phone call from the MRI department arranging an appointment for the 30 May. But it confused me because I got told I would need to make my own appointment when a letter came through for me & now it’s been arranged for me the day after so now I’m sort of thinking that my blood tests wasn’t normal & that’s why they fast tracked the MRI & arranged it for me.

I think I posted on here for some advice & to hear some similar stories really. I just hate this waiting game I just want to know answers & finally know what’s wrong with me! I’ve been poorly on & off for months now so it’ll just be a massive relief to finally know even if it does mean I’ve got some kicking *** of some sort of cancer to do!

Sorry for the long post & thanks in advance

Parents
  • Hi there,

    well I am living with enlarged right tonsil and tons of enlarged lymph nodes on the right side after having a tonsillitis for almost 3 months, and it was 7 years ago. Those things never got back to their normal size. Back then I was told, that if the infection is being present in your body for too long, lymph nodes, and tonsils are also lymph nodes, they might never swell back down.

    Of course I don't know your situation, but that's my story.

    xx

Reply
  • Hi there,

    well I am living with enlarged right tonsil and tons of enlarged lymph nodes on the right side after having a tonsillitis for almost 3 months, and it was 7 years ago. Those things never got back to their normal size. Back then I was told, that if the infection is being present in your body for too long, lymph nodes, and tonsils are also lymph nodes, they might never swell back down.

    Of course I don't know your situation, but that's my story.

    xx

Children