Kidney Cancer

Hi Everyone,

I wanted to introduce myself, so I can help and offer information and encouragement to people affected by this terrible affliction. I am 50yr old male, and in November of 2017, I decided it was time to give myself the once over health check. I was perfectly healthy, no symptoms whatsoever. I had my bloods done as part of my routine health check, then a few days later my very attentative and excellent GP called me to say all bloods came back just fine, but I happened to mention that I had a slight sensation in my right groin ( I just thought I'd mention it whilst I was there ) which was not causing me any discomfort at all. It was this that made him suggest I go for an ultrasound just to be sure. So fast forward early January 18, I go for the ultrasound, and he called me again 3 days later. He said that something was showing in my left kidney but was not sure, so we scheduled a CT a couple of weeks later. He called me back just as quick to tell me that there was a 3CM mass in the upper pole of my left kidney. This is when my whole world collapsed around me. Remeber I had no symptoms, happily plodding along and then this, I was devastated, and it jettisoned me into a state of anxiety, stress and hopelessness. I had to wait a full month before my GP's urgent referral to a urologist happened. Now this month wait nearly killed me with anxiety never mind the tumour :) all joking aside, I will never forget that wait, as it was the unknown, you can't help but think the very worst possible scenario. No matter what people say, you too will think the same, it is just a natural reaction. On March 12th this year I had a partial open nephrectomy in Dublin's Mater hospital. My surgeon had origonally said that he will be doing a laproscopic surgery, however he felt that he needed more access. This initially disappointed me because the recovery times are quite significant between open and laproscopic. The surgery was successful and he took 40% of my left kidney containing my tumour. I won't lie beacause it's not fair, but it is a big op and the initial first 2 weeks recovery are tough, but you will get through it. You just feel alien, like WTF just happened type of feeling. After the morphine feed is removed along with the catheter and drain, you will be ready to go home, I was 6 days in hospital because I simply could not do bowel monement but would have been released sooner if I did..Chances are you will be given Paracetemol which is a joke, go to your GP and get Tramodol for 8 weeks. I find these are effective, as you will need them for the muscle and nerve pain post op. You will slowly begin to fell YOU again, but rest up as much as you can and do not lift anything first 4 weeks as you will risk hernia, and you don't want that. Start walking around the house after 2 weeks, keep moving as much as you can. I am now 6 weeks post op, and I am feeling like me again within reason. I returned to work last week ( office job ) and I did half days as I was feeling tired. It's all about building up your energy and strength 4 weeks post op but do not push it your body will let you know, all in good time. I have just received a latter saying that my follow up is 15th May 2018 so I am hoping for the best like everyone else. If you feel I left something out that might help you more, please ping me. I just wanted to contribute to the forum, because I would have been lost without it during diagnosis and post op. Good luck to anyone heading for surgery, you will be fine, just think on the day, it'll be done soon and think ahead. 

Parents
  • Hi I’m jo im 44 and was diagnosed last October with a 9.5 cm tumour in my left kidney ! I had a radical nephrectomy and like you say found recovery a little challenging ! My tumour was stage 3 and grade 3 ! I had a cr scan at 3 months to monitor a lung nodule and have just had my six month scan which was thankfully clear ! If you have any questions , please ask away jo 

  • Hello I'm 48 years old my name is Andy and I have a 4.1 tumor on my right kidney the consultant said he carnt do a partial nephrectomy because of where it is positioned so he wants to do full removal I have thought about cryoblation where they freeze it but don't know what to do I so confused and frightened don't what to do 

  • Hi Andy, I'm really sorry to hear about your tumour. I hope sharing my story might lessen your fears a bit. I had a full nephrectomy in 2018 when I was 60. There was a 14cm tumour on my right kidney. The consultant was 90% sure it was cancer but it wasn't! It was an oncocytoma which is a rare benign tumour. 
    I was back at work eight weeks later. I have a big scar but other than that I wouldn't know I only have one kidney. 
    I'm keeping my fingers crossed that all goes well for you. It's perfectly normal to be scared. I hope you ask your consultant lots of questions and I hope you have great support from the oncology nurse at your hospital. I did. 
    I've never heard of anyone freezing a kidney so can't comment. 

  • Hi everyone - I know this thread is old but I'm wondering if anyone is still active. I'm a 29 year old woman who's been having trouble with heart symptoms, particularly palpitations. My GP sent me for an ultrasound which said my heart was clear, but then I got a phone call from my doctor the next morning to say they had found a mass on my kidney and I was being referred to a urologist. My appointment is Monday. They didn't give me anymore info than that so I've stupidly been googling and now I've worked myself into an absolute state. I'm only 29 and I have three little kids, it just feels totally surreal. 

Reply
  • Hi everyone - I know this thread is old but I'm wondering if anyone is still active. I'm a 29 year old woman who's been having trouble with heart symptoms, particularly palpitations. My GP sent me for an ultrasound which said my heart was clear, but then I got a phone call from my doctor the next morning to say they had found a mass on my kidney and I was being referred to a urologist. My appointment is Monday. They didn't give me anymore info than that so I've stupidly been googling and now I've worked myself into an absolute state. I'm only 29 and I have three little kids, it just feels totally surreal. 

Children
  • Hi There, I'm so sorry you're having this experience. It's terribly frightening and I think the worst thing is when you're waiting for tests or test results. The mind always goes to worst case scenarios and googling doesn't help. I think we all do it though ! Please bear in mind that it could well be something other than cancer (like mine was) . Try to keep yourself occupied until Monday and if you can do some breathing/meditation exercises it will help with those mind games. I'll be thinking of you on Monday. Please post and let us know how it goes .