My intro to the forum

I've just had the best holiday ever with my wife, son and family in Scotland.  We were supposed to be there for two weeks but had to come back after one.  I feel so happy.

About five weeks ago I went to the doctor to get ointment for an eruption of a hair follicle in my right armpit. She was concerned about a deep lump and sent me to the breast clinic to investigate.  I was attended by a lovely team and other than the extremely long waiting room times it was a pleasant experience despite the nervous period between biopsies and report.  Turned out to be a stage 3 melanoma and so I had to be referred across to the skin clinic.  I received very quick attention due to the combined efforts of GP and breast clinic.  They even sorted out by delaying appointments so that I could get away for the first week of my holiday.  As my GP said, my melanoma boat had sailed.  So now having had a few CT scans I am again waiting nervously for the report this Friday.

I do hope for the best possible outcome but am prepared for the worst.  It will probably be something in-between.

So what has changed over the last two months?  I feel that I have become a different person.  I used to be a little bored with life and was a little ignored by friends and relatives.  Suddenly I feel more alive and the sky seems bluer.  However I am now a person with a label.

Maybe I will be different again after Friday.

The holiday was terrific for many reasons, weather, scenery, the place we stayed at, the closeness of family, the food and the wine.  For many hours we sat and watched the harbour seals below.

A complexity of islets
Ranging from the shore
Is diminished by the tide.
Simplicity restored.
Grey seals' slumber ended,
Lumber over rocks then
Slip smoothly into sea.
Slapping and tumbling, my delight.
I spend a half hour thrilling
At their joyful plunging flights before
Returning reluctantly one last time
Up the log jammed lane
To the homely home of Old Suardal..

This will define my outstanding memory of this period and not cancer.

  • It's great to get good news Jolamine

    My son's friend is a plastic surgeon specialising in facial reconstruction.  He asked him about the surgeon I will meet next week.  The surgeons are good friends and mine is reckoned to be excellent.  I suppose I wouldn't have been told anything if he was rubbish.
    Anyway just another positive thing to ease my mind.
    I'm nervously counting off the days.

    David

  •  

    HI David,

    It must be reassuring to hear this about your surgeon. He is one person that you do need to have faith in. Maybe you wouldn't have been told about him if he was rubbish, but you have been told about him and, that has to be a positive.

    This is still an anxious time for you. Do your best to distract yourself from the wait by keeping as busy as possible.

    Don't forget to let us know how your appointment goes.

    Kind regards,

    Jolamine

  • Hi Jolamine

    I've just had notice of my surgery date, 10th May.

    The hospital has been very accommodating about my pre-assessment and the surgeon and the anaethetist will both meet me on Friday to examine and discuss. This means I won't have two long journeys.

    I've yet another ally on my case.  A surgeon friend (nose and throat) and neighbour had coffee with me this morning.  I discussed the points you raised and he was happy that these represented most of the questions I should ask.  He also reckoned that because I am diabetic I will be at the front of the list. As payback I am going to fit a curtain rail for him.  May be good with a scalpel but useless DIY.

    Kind regards

    David

  •  

    Hi David,

    10th May is not too far away, which is good.I'm glad to hear that the hospital has been so accommodating. It will be so much better for you to do all you need to do in one visit.

    Did your surgeon friend have any other pertinent questions for you to ask on Friday? After this first visit, you will find it easier to draw up questions, as they tend to stem from the treatment path you choose to follow. I had a chuckle at your pay-back - We've all got our special attributes!

    I will be thinking of you on Friday.

    Kind regards,

    Jolamine  

  • Hi Jolamine

    He did talk about pointers but this is down the line when the tumour is analysed.

    He emphasised the necessity of taking it and any nearby nodes out. The risk of spread is very great.

    The lymphatic system is large and my immune system will not be much compromised by the proposed surgery. I will ask this anyway.

    He said my diabetes will not affect the operation other than getting me first on the queue because of fasting.

    He said to ask how long it might take for diagnosis and action plan. Each hospital can be different.

    He wanted to know if he needed to buy rawlplugs.

    I have a busy week ahead getting all the regular jobs done. I am booking a gardener to mow the lawn for a few weeks. It is too much for my wife.

    Going out tomorrow night for a get together with old work colleagues' families so really looking forward to that as it will take my mind off things. Im trying to be abstinent so lemonade for me. I will drive so my wife can partake.

    Kind regards

    David

  •  

    Hi David,

    Your questions will change from visit to visit and will become easier to compose as you start on your cancer journey. It is not wise to leave any infected lymph nodes in. The lymphatic system is like the circulatory system and if they are infected, the cancer can spread like wild fire.

    I am diabetic too and the one advantage is that I am usually one of the first on any theatre list. Do you have type 1 or 2? I didn't have any problem with my diabetes from either surgery.

    Your friends suggestion to ask about the length of time you are likely to have to wait for diagnosis and treatment plan is an excellent tip and one I omitted.. This is a question that many forget to ask and the wait can be that much worse when you don't know when to expect this. In respect of the rawlplugs, I'm afraid that every case is individual and, this is certainly individual to you!

    I'm glad to hear that you are bringing a gardener in to mow the lawn whilst you are recuperating. I did the same 8 years ago and I have held on to him ever since. I have a large area of lawn and a lot of high hedges and I should have done this years ago.

    I hope that you have a great night out with your ex work colleagues tonight, despite staying abstinent - this is not easy, but alcohol can react with a lot of the medication taken for cancer.

    Stay strong and busy.

    Kind regards,

    Jolamine

     

  • Hi Jolamine

    I am type 1 diabetic. I follow a Dafne regime which I'm sure many do.  I received a little notepad from hospital to fill in current medications and any other info. I don't realise how many pills I take but I was able to fill up two pages in tight writing including detailed parameters for glucose control.  I hope no nurse has to follow this and I am able to do it myself.

    It was a good night out despite only 8 out of 14 being able to attend.  Perhaps it was just as well otherwise it would have looked like the last supper.  We are an elderly bunch (I'm the youngest by far) so we are diminishing meeting by meeting.  But always lovely to get together and talk and joke and remember past friends.  The meal was b o r i n g .  I'm not an Italian food fan but English Italian restaurants here serve too large portions of unexciting plates.  Never mind, the company was great.

    Well today I will walk dog, weed, then soak my feet to get ready to visit the podiatrist.  This is a luxury to get ready for hospital.

    I fixed that curtain rail yesterday and the friend has offered us a lift to hospital tomorrow.  This is a great help as parking can be horrendous.

    Hoping all is well with you and thank you for your continued support.

    Kind regards
    David

  • Great news?

    Secretary phoned just before lunch and asked if I could come in on Tuesday 8th for surgery at 7.30.  yes yes.

    If I talk to the surgeon tomorrow he will try and arrange for a bed on Monday so I can manage my blood sugars without having to drive so early on a fast. I think this would be illegal anyway and I would have to stay in a nearby hotel otherwise. Don't want to get banned from driving and a hefty fine on top of all this.

    David

  • Hi Jolamine

    It has been a wearisome day but all my surgery is now in place.  I go in Monday afternoon, surgery Tuesday (only one on his list) and will be in for at least a week.  I've had my preassessment but anaethetist will see me on Monday or early Tuesday.  I seemed to be sitting in various rooms through the hospital waiting for my notes to catch up.  But at least I don't have to go in again until Monday.  I got through all my questions and received understandable answers although I kept interrupting which didn't make their job easier.  Lesson learnt, let your consultant finish all his explanations, then ask at the end.

    Hope you are having a good day.  I am totally exhausted now, probably stress as well as the incredible temperature.

    Only have to get through two more days and garden work will surely fill those.

    Kind regards

    David

  •  

     

    Hi David,

    Hanging around like this can certainly be wearisome, but at least everything is in place. They have obviously found you a bed for Monday, which is good - no worries in trying to get to the hospital with the morning rush hour. Has your surgeon explained exactly what surgery he is going to do.

    It's all very well to let your surgeon finish talking first, provided that you can remember all the questions you want to ask. One good reason for writing them all down, although I'm sure that more questions popped up as you were talking.

    We have had a pretty overcast day here today, with a few showers. I bought some of my bedding plants and some tomatoes, so that should keep me busy over the holiday weekend. I've got 99 pots to fill, so it's quite a task.

    Kind regards,

    Jolamine xx