My intro to the forum

I've just had the best holiday ever with my wife, son and family in Scotland.  We were supposed to be there for two weeks but had to come back after one.  I feel so happy.

About five weeks ago I went to the doctor to get ointment for an eruption of a hair follicle in my right armpit. She was concerned about a deep lump and sent me to the breast clinic to investigate.  I was attended by a lovely team and other than the extremely long waiting room times it was a pleasant experience despite the nervous period between biopsies and report.  Turned out to be a stage 3 melanoma and so I had to be referred across to the skin clinic.  I received very quick attention due to the combined efforts of GP and breast clinic.  They even sorted out by delaying appointments so that I could get away for the first week of my holiday.  As my GP said, my melanoma boat had sailed.  So now having had a few CT scans I am again waiting nervously for the report this Friday.

I do hope for the best possible outcome but am prepared for the worst.  It will probably be something in-between.

So what has changed over the last two months?  I feel that I have become a different person.  I used to be a little bored with life and was a little ignored by friends and relatives.  Suddenly I feel more alive and the sky seems bluer.  However I am now a person with a label.

Maybe I will be different again after Friday.

The holiday was terrific for many reasons, weather, scenery, the place we stayed at, the closeness of family, the food and the wine.  For many hours we sat and watched the harbour seals below.

A complexity of islets
Ranging from the shore
Is diminished by the tide.
Simplicity restored.
Grey seals' slumber ended,
Lumber over rocks then
Slip smoothly into sea.
Slapping and tumbling, my delight.
I spend a half hour thrilling
At their joyful plunging flights before
Returning reluctantly one last time
Up the log jammed lane
To the homely home of Old Suardal..

This will define my outstanding memory of this period and not cancer.

  • The waiting was awful but I've been given a good report. Stage 3 melanoma with only local spread and no sign of source which apparently is a good thing.

    Thanks to all for support.

    D

  • Excellent! You couldn't have hoped for better results, given that you knew already that it was at least Stage 3. Best wishes. Harry

  • Go to see surgeon on Tuesday, then surgery within a couple of weeks, I think.  Will get radiotherapy based on the examination of the nodes.  Then I think CT scan every 6 months for a few years.
    I know I'm jumping the good news gun but I think this fits what the specialist told me.

    Such a relief for family of course which of course removes my concern. Worrying about nearest and dearest is very wearing.

    I'm off to do some gardening, well covered up of course.

    David

  •  

    Hi Dafra,

    This sounds about as good as it gets. Waiting for results is always a stressful time, but you should feel better once you start surgery and treatment.

    I hope that all goes well when you see the surgeon on Tuesday.


    Kind regards,

    Jolamine

  • Jolamine

    The meeting with the surgeon has just been cancelled and I have been referred to another end of next week. No reason really except an overbook.

    I'm not too upset as it is not like the wait before diagnosis.

    D

  •  

    Hi Dafra,

    I am so sorry to hear this. Time passes slowly enough at this stage without having to wait almost another week. I agree that it's not like the wait for your diagnosis, but I'm sure that you are anxious to decide upon the best way forward for surgery and treatment and could well do without this delay.

    Thinking of you and wishing you well for the end of the week.

    Kind regards,

    Jolamine xx

  • Hi Jolamine

    I meant to reply before to say out what a lovely person my contact nurse is.  I had not realised, when I was introduced to her before I left hospital after diagnosis, just how important she would be in sorting out my turbulent thoughts and practical problems.

    She phoned just after I learned of the cancellation to make sure I wasn't making an unnecessary trip.  She explained the reason for a change of appointment was that I had already been booked into the system for the later date and it was her mistake for organising that earlier date from another surgeon.  My new appointment was for early morning. I live a long way from the place.  She then contacted the surgeon who told me to just come in as early as I can. He also asked if I was likely to give permission for the op and would try to have the aneathmatist around so I could have all the prelims done on the one visit.

    I just want to praise them all for their care and consideration.

    Now I am compiling a list of questions.  What if I don't have the nodes removed?  How much will my immune system suffer? What are the risks of long term lymphoedema? Any other questions would be greatly received.

    Thank you for your best wishes. You are very kind.

    David

  •  

    Hi David,

    I am glad that you are already discovering how important your contact nurse is. She sounds as if she is very pro-active too. Making arrangements to get everything done on the one day makes a huge difference when you have a distance to travel, as does making the appointment a little later in the morning.

    You may want to know what your chances are with/without surgery.

    You will want to know what type of surrgery the surgeon is going to perform and where he is going to perform it.

    How long you are likely to be in hospital for.

    They will usually remove a few nodes to see if they are involved. If not, this is good news. If they are, they may need to remove more later. The lymphatic system is like the circulatory system. If nodes are infected, they can spread the infection throughout the body. As you don’t want this to happen, it is usually wise to remove any infected nodes as soon as possible to prevent spread.

    You might want to know how many lymph nodes he plans to remove and what the downside is to removing lymph nodes.

    What are the chances of developing lymphoedema? Just a word of warning. I was told that my chances were slim, but now have it in both arms and hands, so they never really know.

    You will want to know the likelihood of radiotherapy improving the situation and by how much it is likely to do this.

    You may also want to know how things might progress if you didn’t have radiotherapy.

    You will also need to know what the side-effects of radiotherapy are and how your surgeon expects that it might affect you.

    How long does it usually take for your wound to heal before you can start radiotherapy.

    How many sessions of radiotherapy you are likely to need.

    How will this affect your immune system?

    If the anesthetist is also there, you may want to know about any risk associated with a general anesthetic. This is also the time to mention if you have had any problems with anesthetics in the past.

    Maybe others can add to this list. You will find that your questions change from one visit to another, but these are probably the main questions that you want to ask just now.

    Kind regards,

    Jolamine

  • Jolamine,

    That is a terrific response and I will certainly be taking it with me to interview.

    I have just had another letter from the skin clinic.  I think it is good news.  My melanoma is wild but I'm happy.

    Regards

    David

  •  

    Hi David,

    I'm glad that you're happy with letter from the skin clinic.

    I had a good day on Monday too. My lmphoedema nurse had referred me to get a mole on my back looked at. I saw the dermatologist and she assured me that it was nothing siniser - Phew!

    Regards,

    Jolamine