aftereffects of BCG bladder treatment

Hi

Just trying to see if anyone else has had the same experience.  Recently finished my second 'maintenance' treatment after being passed 'clear' following the main 6 treatments. So really good news but the aftereffects (if thats what they are?) seem to be lasting much longer than previously.  The bladder irritation after treatment usually went after two or three days but with this last treatment l still have a constant ache in the bladder/scrotum area three weeks after treatment?  Pain is controlled by Paracetamol so not that severe but would like to hear from other sufferers to see if this eventually goes away?

Parents
  • Hi  I've had my 6 th treatment  nearly 2veeeks ago and have been in agent ever since .!the burning sensation is awful it wont go away and I'm weeingbroughly every 30 miss     has any1 had these symptoms  please

  • Hello Give up in response to your question I have had a total of 14 BCG instillations ending in September last year. They did stop it because it made my bladder inflamed. I think I maybe one of the exceptions to the rule because of my reaction to it. I still suffer to this day with chemical cystitis brought on by the BCG.

    Obviously people react in different ways, some tolerate it far better than others. So my experience of it won't necessarily be the same for you.

    Take care Chris

Reply
  • Hello Give up in response to your question I have had a total of 14 BCG instillations ending in September last year. They did stop it because it made my bladder inflamed. I think I maybe one of the exceptions to the rule because of my reaction to it. I still suffer to this day with chemical cystitis brought on by the BCG.

    Obviously people react in different ways, some tolerate it far better than others. So my experience of it won't necessarily be the same for you.

    Take care Chris

Children
  • Hi Give Up, also following on from the discussion, all I can say is hang in there and don't hesitate to talk to your consultant as there are some treatments out there that can help relieve the pain and discomfort. In most cases the pain and discomfort does ease over time as your bladder wall linning (which becomes inflamed during the treatment) returns to normal. Unfortunately, I'm one of those along with ChrisSC that has prolonged cystitis type pain and also had my treatment stopped around 3 years ago. But this is not always the case and by keeping your consultant informed about your concerns, they can monitor how to proceed. All the best, regards Capey