Hello.

Just briefly, i was diagnosed with stage G3 bladder cancer back in October of 2015.

i started my corse of BCG treatment in January 2016 and had 2 years of it (around 22 doses) i did loose count.

like you, i was fine and i must admit, "cocky" for the first 3-doses but after that i was bad, fealing sick, stinging pain down the eurethra and lots of toilet urgency and loads of other side affects you may already know about.

back to the present, i am very thankfull to all concerned, the consultants and the nurses administering the treatment that i am still cancer free but i am now left with an intermitant stinging sensation down the euethra that some times stops me in my tracks and leaves me doubled up in agony especial when i urgently need a pee.

i asked the consultnats about this condition and was told that it was a "trade off" from all the treatment and that "at least you still cancer free".

where as i'm greatful to be cancer free still, the condition i'm left with i'm unable to get answers to, one of the nurses said it was down to the strength of the urine and to "make water your friend" but this is also difficult when your left with reduced bladder capacity due to the treatment.

I CAN'T GET ANSWERS, we shouldnt be left in this condition.

if i had known all this before treatment, i would of had them take the bladder away.

Sorry if this doesnt give you the answer you were looking for.

Hi Trev

I know how you feel I am exactly the same I’ve had this pain for months now along with sleepless nights i have just had my 27th course of bcg a week ago I feel the same as you and thinking of having the bladder taken out if it comes back again at least we could get on with our lives instead of being tied to the hospital for the rest of our lives

Hi Trev

I know how you feel I am exactly the same I’ve had this pain for months now along with sleepless nights i have just had my 27th course of bcg a week ago I feel the same as you and thinking of having the bladder taken out if it comes back again at least we could get on with our lives instead of being tied to the hospital for the rest of our lives