Im currently in the same boat, however im 20 years old and ive been told i have Polyps which is very rare to have at my age. I wasnt told much during my transvaginal scan other than to call my gp to book an Gyno referral but when i did my research on it after i got kind of scared as they have to rule out cancer and the fact i have to get surgery. i have had terrible period pains for the past 3 years and only this week did they find something. Can someone give me advice on this situation as i was properly explained and i feel very shocked and feels as though a bomb was set off

Hi yumzz,  there are lots of us on here had similar frights with the 2 week referral and have an understanding of how you feel. I had a cervical polyp found during an attempted  smear, which I went for as I had some bleeding (and I'm post menopause) - it started off my 2 week referral as they said their process it usually to remove them and biopsy them, though they say they are usually benign.

The good thing about the 2 week wait is you do not end up on a 6 month wait list, despairing, the downside is the sheer panic and to be honest, terror, when you read about the 2 week wait process and see the word cancer.   They say that they are usually ruling out anything malignant more often than suspecting it, but thats not how it comes across is it!  I know how scary it is, but try and get that first appointment with the specialist and see what information they can give you about your results.

The  polyp I had  turned out to be benign,  as did everything else so please don't panic as much as I did - easier said than done XXXX 

Hi everyone,

I had a transvaginal ultrasound today as I've had postmenopausal bleeding, not a lot and I noticed it was when I was dehydrated for some weird reason. I got my appointment really quickly thank goodness but I was the last on the list and when they found I had a womb lining thickness of 5mm I couldn't have the hysteroscopy as they didn't have time. I now have to wait a week for this next test. I'm worried sick as she tried to take a biopsy but couldn't as I had scar tissue from a Lletz 11 years ago. I'm dreading having this done and have no idea how bad it is to have a thickness of 5mm when postmenopausal. Anyone else been in this situation?

Hi there, I had  6mm and they didn't seem too worried.  They didn't even attempt a hysteroscopy at the first appointment as after the smear  they seemed  to realise I would need an anaesthetic,  she was  probably right there! ️

Hi,

Thanks that makes me feel a bit better. She did say they were just being cautious. I'm really worried as to how much this will hurt because of my scar tissue. I'm wondering if I should have said I wanted general anesthetic instead of local. I see you had a polyp, she did mention that they would remove that at the same time if they found one.

I wasn't given any options - I haven't had children and was having problems with the smear and she just said it would be general anaesthetic.  As I had never had an op before I was actually wishing it was local as I  thought it would be safer to be awake ..... then I heard a R4 programme on how some women were finding it difficult to get any anaesthetic at all in the UK for these procedures, and some people found it very quick and painless and others definitely didn't, so I decided I was probably lucky and didn't question  it further....

Hi

I have seen the same as you, some find it fine others not. I decided to phone up and ask for a general anesthetic given that because of my scar tissue from a LLETZ I had some years ago, she wasn't able to get the tube through to do a biopsy. I felt that they will probably have a problem getting the scope etc in. I do feel calmer about it now. Unfortunately I will have to wait longer which isn't ideal as I dont do well with the waiting. The weird thing is I seem to only get spotting infrequently and when I'm dehydrated. Hopefully I wont have to wait too long. Thank you for sharing your experience, it really makes me feel I'm not alone with this.

Hi all,

Im new here and just wanted to share my experience and worries. I am 38 years old and had a hysterectomy ( cervic and uterus removed) at the age of 29 due to abnormal smears for 3 years followed by several biopsies, lasering ect. My cervix was covered in pre cancerous cells and it was the last option to me. Anyway, fast forward to now and I thought I had seen the last of any gynaecologist! I have been seeing my gp since last summer with what started off as constant bloating and mild pain in the abdomen. I was given some anti bloating tablets and sent on my way. I've now seen a gp on and off for the past 2-3 months due to severe pain in my abdomen and pelvic area and lower back, itching across my abdomen and pains down my legs. I was prescribed Zapain to take for the pain. Well they worked for about 20 minutes and the other 3 hours and 40 minutes I felt like I had downed a bottle of vodka!! Another trip back to the doctor and a CAT125 blood test was taken as well as 4 other tubes. CAT125 has come back ok ( huge relief!) but my markers were up for inflammation in my body somewhere. I also had an abdominal scan and vaginal scan. I went to get these results on Tuesday just gone and was told I had 2 cysts on my ovary ( I already knew this from when I had my hysterectomy) and that they weren't anything to worry about but I've been told they have spotted a dark shadow type mass on the right side of my abdomen which they would like to investigate further and run some more tests. So I've been referred to see a gynaecologist in a couple of weeks. I'm not quite sure what tests they are going to do. Feeling very anxious at the moment as I've not had much luck from the belly button below. 

Hi Saffichick, when they needed clearer imaging on me I was sent for MRI which included all abdominal area, so thats a possibility - and easy to get through.  Can't believe how worried I was about that now .... Thoughts are with you for your appointment and hope all goes well xx

Thank you. I'm sure it's nothing but I hate the waiting game! 

The waiting is the worst bit, scanxiety I've heard it called. I was worried sick over the results of my transvaginal  scan but ive now had the hysteroscopy and biopsies done, under general because of issues with my cervix. The consultant was just horrible, I felt like I was putting her out by being there. Total shock as I've never had anybody like that before. The healthcare assistant apologised to me and said that she could be like that and wrote it in my notes for all to see. Hopefully she will think twice about being so rude again. She decided that I should have a Mirena coil fitted which I agreed to but I would have agreed to a total hysterectomy or my leg chopped off if that's what she wanted. When I was given the leaflet on it in the ward after it said much to my horror not to be used if you have or have had breast cancer! Which I have. Unfortunately a doctor didn't see me before I left for me to ask all the questions I had, so I made an appointment with my doctor who was so good. He reassured me that because mine was PR - the coil was ok for me, however Dr Google says it's not suitable for atrophic wombs which according to my discharge sheet my uterine cavity was unremarkable and atrophic. This begs the question whether I am going to get any benefit from this at all? I'm aware it will stop any further bleeding but that was hardly anything and very rarely. I can get it taken out at the doctors, so wont have to face the consultant again but I'm not sure what to do. What are the other benefits if anything. Does anyone else have experience with Mirena coils?

Waiting on results of the biopsies now, hopefully they will be ok with it all looking unremarkable. Scanxiety!!!! 

The waiting is the worst bit, scanxiety I've heard it called. I was worried sick over the results of my transvaginal  scan but ive now had the hysteroscopy and biopsies done, under general because of issues with my cervix. The consultant was just horrible, I felt like I was putting her out by being there. Total shock as I've never had anybody like that before. The healthcare assistant apologised to me and said that she could be like that and wrote it in my notes for all to see. Hopefully she will think twice about being so rude again. She decided that I should have a Mirena coil fitted which I agreed to but I would have agreed to a total hysterectomy or my leg chopped off if that's what she wanted. When I was given the leaflet on it in the ward after it said much to my horror not to be used if you have or have had breast cancer! Which I have. Unfortunately a doctor didn't see me before I left for me to ask all the questions I had, so I made an appointment with my doctor who was so good. He reassured me that because mine was PR - the coil was ok for me, however Dr Google says it's not suitable for atrophic wombs which according to my discharge sheet my uterine cavity was unremarkable and atrophic. This begs the question whether I am going to get any benefit from this at all? I'm aware it will stop any further bleeding but that was hardly anything and very rarely. I can get it taken out at the doctors, so wont have to face the consultant again but I'm not sure what to do. What are the other benefits if anything. Does anyone else have experience with Mirena coils?

Waiting on results of the biopsies now, hopefully they will be ok with it all looking unremarkable. Scanxiety!!!! 

Oh HNew what a stressful experience.  My consultations were delayed and I didn't have time to discuss all I needed and saw s different doctor at each appt. The locum and then different specialists I saw at the hospital  gave me a lot of confidence that they were looking for best solution for me and were caring.  In contrast I saw a dermatologist years ago who left me in tears after final consultation and was part of me giving up going to GP with period/skin problems.  Fast forward to my 50s and I find I had endometriosis all along- so Ii shouldn't have let them put me off ️ i don't think I would have really wanted a coil in my situation, a bit late in the day for me! perhaps your GP can give you some more insight before deciding?  Also like me you may see a difft consultant next time.

Hi DaisyW

Unfortunately as I was not in a good frame of mind I had agreed to the coil. I'm so uncomfortable today. Will give it a few more days to settle and if it doesn't I'm going to get my GP to take it out. 

It is so difficult isn't it, first meeting with one specialist I found myself agreeing to full hysterectomy as well as ovaries/tubes for the following week and went into panic mode !  Didn't end up having the full hysterectomy as they couldn't complete it as endo had stuck bowel to it ..... Now I'm thinking it would have been best solution if it had been able to go ahead as everything out the way ...

Hi All,

I am new here. I have been reading all your discussion and I decided to join. I have been diagnosed with an ovary cyst 6 years ago and I was searching for help and advise and what I have heard was we will need to observe this. I have done the CA125 was good. I have been told so many different diagnosis and have decided to travel to Poland and I have found a Professor who is an expert in ovarian cancer. My all results were clear - CA125,ROMA. But still I didn't feel well I started to have a back pain. I went to him and after the ultrasound he referred me to the hospital with a risk of having Borderline ovary tumour - semi cancerous. I have booked the laparoscopic surgery and I have done it within 2 weeks. At the end it was the benign tumour . But I lost my ovary ( left) and the tube ( June 2019).I have had a follow up scan in August 2019 - all clear. I have been asked my GP about referral to the gyne clinic as I wanted to double check ( I had an ultrasound on the 27.02.2020) and during that I have been told I have a 4cm dermoid cyst on my right ovary. I was shocked. I didn't expect that. How is it even possible that have happened within 6 months. I will have a follow up app on 16/03/2020. The sonographer told me that it's nothing to worry about . But I am scared that I will lose my only ovary. I am afraid that if something like that developed within 6 months that must be something serious. I can not go through the wait game again. I don't have any symptoms but I am shocked and not sure what to do.

Hi,

sorry for jumping on the post. I'm new too!

I had a referral to gynae from my gp after over a year of horrendous periods lasting 10-14 days. The pain is often crippling and I need to wee all the time. I had the hormonal coil and that made symptoms worse.

I had an appointment for a hysteroscopy about a month ago, however they said my symptoms were definitely down to the coil. Didn't do the hysteroscopy and just took my coil out! I'd prepared myself to have the procedure and on hindsight should have asked for them to have a look around anyway. A little confused and annoyed after my appointment I rang my gp straight away as they'd left me with no contraception!

First period after my coil removal- i daren't move out of the house that weekend. The amount of blood and the size of the clots was just awful. I went through a pack of pads within 48h.

So now my gp has referred me for an ultrasound and possibly a transvaginal scan too. Which is tomorrow.

I work for the NHS and we make the worst patients!

Has anyone experienced similar symptoms? I'm 29.

I'm thinking possible endometriosis, PCOS and obviously the worst... cancer.

Apologies for the long post!

Cx