Hi all.

Iv not been well sic chirstmas and I had a scan yestoday .I asked the lady was all ok she just told me to make appointment to go in on tuesday.. But on my letter it says 14 days????

She asked which scanning if my lady time had changed.. 

Iv been in a lot of pain in my right side builds up but every day it's there some day wrose the others...3 weeks ago left side started hurting to i feel sick if I don't eat and when I eat I have lower back pain and my lady times are abit all over the place.. I'm so worried it's going to be something bad just have this but feeling and I'm not like that at all.. I was just wondering if anyone elsh been where I am .. thank you for taking the time to read my post k x

Hi, I felt the need to reply to your post as I'm sort of in the same boat. I've been in pain for about a year and a half, periods suddenly very heavy and bleeding plus strange discharge in between, my stomach is swollen like a balloon, I can't stop weeing and it hurts when I need to wee, my bowel habits have completely changed, I feel sick alot and struggle to eat etc. I had a scan recently, seen the same sonographer a few times and she always says all's fine just call to get the results in about 2 weeks, this time after transvaginal ultrasound she looked worried and said ' call your doctor in a week, make sure you call the doctor in a week!' I couldn't say much as my son was with me. The doctors called 2 days after the scan and said I need to speak to the doctor, he explained that I have endometrial thickness, an enlarged ovary and fluid build up, but that he wasn't going to refer me as I'd seen gynae recently and had another appointment in a month. My gynae appointment is soon. I had a c section a year ago and the scan result said possible adenomyosis so it's either a complete c section mess up or cancer. I have 5 children and I'm worried. When is your gynae appointment and did you get your scan results? Why do they leave us in limbo!? It's horrible. 

I am nearly 2 months into my 2 week referral and haven't seen a specialist yet - only he can give me the results apparantly, so I know my CA is raised  but no idea how much, or what the MRi showed.

I am thinking Ovarian cancer too and terrified as post menopausal.  The odder Unidentified Objects that apeared on the ultrasound are the worry rather than the simple cysts and fibroids,  but google does tell me that a lot of odd solid masses can be benign too. So I'm hoping.  I guess they will have to remove them  to confirm, and perhaps I get the option of everything due to age?  No idea.  I am glad of google or I would have no information, at least it lets me work out what the options may be so I don't go blank when I finally see the consultant and I can make the most of my 20 mins or whatever you get.

I got my ca125 results by text so maybe there is hope. I do hope you get seen soon

mine is a simple cyst or was on my last scan 6 months ago so if this cancer it has grown fast, I don’t have any specific symptoms I went because of pain my right side my cyst is left, but because of my sister he did the TV scan as well, I suppose I should be grateful 

i am also post menopausal and that is a concern with cysts

I have never had an ultrasound before so I wonder if I probably had a  completely dfferent set of cysts 5 years  ago and I was oblivious.   The cysts were incidental findings and have sort of taken over now they have been found.  My  pains were always Left sided but stopped after menopause, the current/remaining cysts are on the right.   They said  5 - 6 cm so small, but they don't look small when I draw them all out, and wonder how on earth so many of us accommodate these and the associated worry! 

I am thinking with myself that  perhaps if it is something perhaps its a chance to catch it early, or earlier, than if I hadn't had an ultrasound.  Perhaps a chance to think about removal of things that may be a  problem in the future even - the less to go wrong the better?

It sounds really  promising that you have a good CA125 and a simple cyst, so I will keep my fingers crossed for you that all is OK XXX

Hi i hope everything is ok im wondering if anyone can help i have been getting cyst that pop before every surgery i had a scan on thursday and cyst was found on my ovaries and my doctor rang and said i need to see her ugrently im 27 and my family history with cancer is really bad . Im wondering if i should be worried as i have a 2 year old daughter . But ive been in pain with my pelvis for 6 months i dont eat proper anymore lucky for one meal i have 3 week periods i have ibs aswell so my bowel movemnts keep changing im bloated all the time in pain at work and have take strong tablets can someone please help me . 

Hi Mel8

Try not to worry - easier said than done I know. When I was younger I regularly had small cysts on my ovaries which I was told after ultrasounds were normal - as sometimes the eggs do not release or something and so a cyst forms which will usually disappear within a few cycles - it is normal. Obviously if the cyst doesn't go and keeps growing then they will want to take it out and if it is quite big then this is probably why you have symptoms. We had a girl at work who had this operation recently and hers was massive -  and she is fine now.

I am menopausal and have a cyst on right ovary which should not be there after menopause.

They are generally very quick at getting anything of concern sorted out in the NHS gynae - I am assuming you now have a Doctor's appointment to see why is is urgent??

Hang in there - you are very young so the chances are this will not be anything serious

Good luck - keep me posted

Hi 1william1

Hope you are well and everything has been resolved now.

I am in a similar position and waiting for my 2 week appointment at the hospital following a scan that identified calcification of one of my ovaries. 

I am thinking no matter what happens I would like to get my ovaries removed as I've worried about this before because my mum had ovarian cancer. 

Have you had your ovaries removed? Was this a straightforward process? 

Thanks

hi

After 3 scans and alot of back and forth between hospitals and appointments, last just before christmas  I got a letter says they are refering me back to original hospital to go on the waiting list for surgery. The oncology clinic made it clear that if there was something to worry about on the scan i would have to have surgery with them. on the last scan they thought it was thickening of the cyst wall, but the case had to go to the MDT. i am assuming panic is over, but they never say that, i have heard nothing yet. When i discussed  BSO it was a simple day case proceedure though. I am guessing i am ont he 18week wait list.

I hopw everything goes ok with you the 2 week fast track is scary, just ask lots of questions I did.,  

Hi 1william1 

Thanks for your prompt reply - glad to hear things seem to be working themselves out.

I will ask about having my ovaries removed at the appointment.  I'm not sure what's going to happen yet. I just got a text, haven't had a letter yet so not sure what is going to happen. Just want to get it over with!

Thanks again 

i get it i was the same, thing is like you i ahd a family history so they have to do this, but once you are on the fast track there is no getting off, the oncologist told me that. It will be quick, i hate to say it but they have targets to meet and you have to have an appointment within 2 weeks. I did get alot of calls in the 2 weeks and my first apppointment was good.

I wish you luck i hope it all goes well, but like you i justed wanted my ovaries gone so i did not have the worry. 

Hi there - I had a BSO back in October.   I had to have it done abdominally which takes a bit longer to get over so 4-5 days in hospital is typical.  They say 6-8 weeks recovery after that and some people are OK quicker but I took a few weeks longer, I guess its all individual  They were thinking about keyhole which would been 2 or3 days I think where I was, although as above some may do it as day patient, and a quicker recovery time as you don't have the larger C-section/hysterectomy type cut to deal with,  and theres probably less 'messing' with your insides !!! :-)

Hi there - I had a BSO back in October.   I had to have it done abdominally which takes a bit longer to get over so 4-5 days in hospital is typical.  They say 6-8 weeks recovery after that and some people are OK quicker but I took a few weeks longer, I guess its all individual  They were thinking about keyhole which would been 2 or3 days I think where I was, although as above some may do it as day patient, and a quicker recovery time as you don't have the larger C-section/hysterectomy type cut to deal with,  and theres probably less 'messing' with your insides !!! :-)

Hi DaisyW

Thanks for your reply.  Glad to hear you are recovering well.  I was going to ask if I could have my ovaries removed after they have done the examination this week in the hope that I can avoid getting ovarian cancer in the future. 

Good to know the operation is fairly straightforward. :)

My biopsies were all benign in the end and I have been asked whether I think I went through it all unnecessarily, but there is a relief there that it's hard to explain to people who havent been under investigation for several months for ovarian cancer.    I wish I had been able to have keyhole but endometriosis found during surgery meant they couldn't.  I was going to have hysterectomy too, it turned into just the BSO to removes the tubes, cysts and ovaries.

So pleased to hera your news DaisyW. I have a 2.6 cm cyst on my right ovary that is being watched and just awaiting results of an endometrial biopsy. The cyst started off as 2.2 cm and seems to grow a mm every time I have an ultrasound.

Hi suemc1,  mine all felt rushed in the end as I thought I would have had mine monitored for a while.    I think I may have got a cancellation slot for the op as I only had a weeks notice after quite a wait for imaging and appointments.  I had had 2 pre-ops recently so they had some confidence I would be able to take up the place and  my cysts  were larger and with a raised CA and some strange features on the MRI so fit all their criteria for high risk.  I also had one simple cyst,although large they didnt seem too worried about.

Hi DaisyW - Well I am glad that all turned out well for you in the end as your problems sounded more comples than mine so far anyway so it shows you that things can turn out ok I have refused another CA125 test as the anixiety sends me crazy and if it has risen theyll just do another ultrasound which they have just done again so I can't see the benefit other than causing undue worry. I hate getting old!! I didnt have these problems pre menopause!!  I am also waiting for biopsy results from my uterus as I had some very very slight post menopause bleeds - barely noticable unless you really looked - which I do - and also I had some yellowish discharge but negative for any infection - Im two weeks into the wait for those results

The endometrial biopsy is something else!!

All the best to you ladies