Urgent referral after ultrasound - trying not to worry

Hi there,

Following a transvaginal ultrasound on the weekend my GP called to tell me that she was making a 'fast-track' 2 week referral to the gynaecologist (they've now also called and I've got an appointment Wednesday next week). It's knocked me for six a bit and although I'm thankful that the wait isn't too long it feels like forever and I'm finding it tough, knowing that the 2 week referral can be because cancer is a possibility.

I've been getting symptoms (spotting and a bit of pain in my pelvic area) for around 6 months and in October had the most excruciating period pains and heavy bleeding, which has happened every month but one since. I knew something was up as that's not normal for me, so saw the doc in Feb, who referred me for the ultrasound. I'd convinced myself that my symptoms pointed to endometriosis, so when the ultrasound technician mentioned that I'd be referred to a gynaecologist to talk to me about my uterus lining, and she seemed surprised that I hadn't been experiencing symptoms for longer, I figured that maybe it was endo.

Then I got the call from my GP yesterday to say that the ultrasound showed thickened uterus lining and said she was making an urgent referral to gynaecologist, where they may do MRI or hysteroscopy. She mentioned a one-stop shop, not sure what that means? She then mentioned something about that they may find it's fibroids or polyps, but that they need to rule out cancer too. It was the secretary who called to book me in for the gynae appointment, and she said I'd be sent a letter with more info, so I guess that may give me a better idea of what tests they might do and what will happen at the appointment? 

Tried to talk to my mum about it to relieve my worries but she lives a long way away and is quite matter of fact about medical issues (she had problems with fibroids and had to have a hysterectomy, so has been through similar), which I do appreciate but I felt I wanted to be able to talk her about it more. 

Sorry for long post, would really love to hear from anyone who's been through/ going through similar. Just reading other's posts has been a big help.

Liz

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  • Ahh sorry I replied to someone else when I meant to ask you . I’m new to this  

    I hope everything went ok, do you have an update xx

  • Hi, I just wrote a long reply and can't see it now so apologies if this double posts. I've been meaning to post an update for ages as I know how helpful I found it to read others updates. Sorry it's taken me so long. 

    In short, everything was fine and the biopsy came back clear. As soon as I went in for my appointment I felt more in control, and was just grateful that the wait was over. The consultant was great, she explained why I'd been referred and what the hysteroscopy would entail. She also said that she felt it was unlikely that it would show up anything too serious. 

    The hysteroscopy was less painful than I thought it would be. I took painkillers beforehand as advised and I barely felt it. She had a good look around and couldn't see anything untoward. No sign of polyps as had been suspected. She also did a biopsy, and said that it would be highly likely to come back clear. 

    As there didn't seem to be anything untoward that was causing my symptoms she though that they were most likely due to normal changes in hormone levels, and advised hormonal contraceptives to manage the symptoms. I've been taking the pill and now have no issues with pain/heavy bleeding.

    Dinksw - I hope that your gyno appointment went ok today and that you have been given more info and reassurance. And to all the other ladies on this post I hope you had a positive outcome. The stress and worry is awful and I feel what you're going through xx

  • Hi All

     

    Im just joining onto this as im now doing the stupid thing if googling when I know I shouldn’t. 

    I have a past history with endometriosis and conceived my little girl through IVF, iv always had painful periods but the past few months they have been horrendous even fainting from the pain. My GP sent me for a ultrasound yesterday and whilst there she told me she seen a cyst so to go to my GP next week. This afternoon I received a call from my GP less than 24 hours after the scan stating that I need an emergency appt so one booked in for 1 week on Monday but I also need to get bloods done tomorrow to check for ovarian cancer the CA something test. With it being bank holiday the results won’t be back until Tuesday. 

    I am now sitting here worrying like mad if the blood test comes back ok why would I still need an emergency appt? These are obviously questions I should of asked today but I was shocked so didn’t think has anyone had this blood test done before the appt talkative could put my mind at ease this evening? 

     

    Many thanks 

    Lorraine x

  • I'm so sorry to jump on all your posts but reading through them I'm experiencing similar symptoms. Im currently under investigation for oc, had 6 lots of blood tests taken thurs including the ca125, have a follow up appt this Tuesday and I'm absolutely bricking it. I've had ovarian cysts since I was 24 (I'm now 32), periods were just horrid, would have to use a tampon and sanitary towel and they would last 2 to 3 weeks. I had a coil fitted to control them but I still bleed and the pain I get is beyond extreme. I can also feel a mass in my right side it when pressed it hurts. I've also got endo and was told I was lucky to concieve my daughter as apparently my left doesn't work. I'm so sick of all this, my bloody trousers don't fit although I'm loosing weight it's gaining on my lower half and if one more person congratulates me on my pregnancy I'm gonna scream! 

    Xx

  • Hi, I’ve just read this thread - I had blood tests showing my CA125 levels are raised, had a pelvic ultrasound which apparently showed nothing, a chest X-ray which was clear and then another GP actually listened to me and sent me for an internal scan which has showed the lining of my womb is 15 mm when it should be around 5 mm. I’ve not had a period since I was 45 - I’m 48 now and in July I had a massive bleed but the first GP said he’d be more worried if I was 58 not 48 (I don’t think my age has anything to do with it) I have pain around my right ovary, in my pelvis, the tops of my legs and intermittently in my rectum. I’ve also lost weight go to the loo a lot and feel sick when I’m eating. I’m seeing a gynaecologist/ oncologist on fri but have to go for further scans on Thursday (2 wk appt) the waiting is making me more cranky than my supposed menopause! 

  • Hi 

    I noticed that no one has replied yet to enajl9. How did she go on? I am in a mess myself right now. I am 53 and menopausal for 3 years when I had a slight bleed. I have had a couple before. The ultrasound found cyst 2.6 mm on an ovary and also something about cyctic area in a fibroid and 13mm of fluid adjacent???? My lining was only 1,5mm though which is good. I have also had a CA125 test

    I didnt get it explained very well at all and have been referred for an appointment with the gynae consultant Weds 28th. When the letter came it says "you are free to bring a friend or relative" and as I have never seen that on a hospital appointment before ever, I am fearing what he is going to say as it seems weird to see that it an appointment letter

    I was wondering if anyone has ever seen that before and whether it means bad news

    I also have pain in the top of my right leg near the groin (same side as cyst) and have had urge problems with weeing for a long long time.

    It is just so upsetting

     

  • Sound like there is room for them in the waiting area so you are free to bring someone for support.  My letter said I should have someone to take me home which scared me - what were they going to tell me! In the end I think it was in case they did a hysteroscopy which they didn't as they decided on a general anaesthetic.

    They said MRI is next for more info on the findings.

  • I too was told in my letter that I could bring a friend or relative with me to my gynae consultant and hysteroscopy appointment. I think it's standard procedure in some hospital departments. For me having my sister there during my hysteroscopy really helped to calm my nerves, and they didn't give me any bad news.

    I hope your appointment goes well suemc1 and that you get some answers. 

Reply
  • I too was told in my letter that I could bring a friend or relative with me to my gynae consultant and hysteroscopy appointment. I think it's standard procedure in some hospital departments. For me having my sister there during my hysteroscopy really helped to calm my nerves, and they didn't give me any bad news.

    I hope your appointment goes well suemc1 and that you get some answers. 

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