Surviving tonsillar squamous cell carcinoma.

hi all.i have just discovered this forum whilst looking for further info on this type of cancer(just a personal interest) and I am so sorry to hear how you are all having to face this hideous cancer.i was diagnosed in 2012,with tonsil cancer and my life,and that of my family thrown into turmoil.i needed 30 rounds of radio and 3 of chemotherapy as an inpatient at the Christie,Manchester.the nausea and metallic taste from the cisplatin and 5fu chemo were very unpleasant,and I couldn't face food at all.just a fresh,clear chicken soup my mum made.the radiotherapy caused a lot of pain and by week 3 I could hardly get fluids down.i was given a nasal gastric tube and it was very difficult to get the right 'feed'as they all caused vomiting.i couldn't keep it down.I live alone but fortunately live next door to my parents so I had lots of help.everyone's experience will vary though of course there will be many similarities.getting the right pain relief is crucial.i had morphine and a wonderful paracetamol mixture which had all sorts in it.though I can't remember what exactly.it is a gruelling ordeal to have to go through.i have suffered with chronic depression since 1989 and so trying to endure the treatment was a challenge indeed.i have just made my 5year anniversary of being given the all clear so stay strong guys.i found out that this type of cancer may be caused by the human papilloma virus.i had never heard of it and was devastated.teenage girls are vaccinated now so as not to contract the virus,but not boys.i have made my son promise that he will pay to have my 6 year old grandson vaccinated when he is old enough.it costs around £350.wishing everyone good luck with their treatment.

kind regards

karen

  • Karen

    well done you, myself now being 3.5 years post treatment for throat cancer, but having a wife a big friend and family network to lean on during this time .... going through it semi alone .... hats off to you

    i wrote a blog all the way through my treatment I Now use it as a memorable diary of emotional and physical events I went through ... it’s also out there to help others going through it and I get many comments from all over the world

    ive enclosed it as like survivors who have been through what we have been through, used it to jog their memories about the little things they had forgotten about

    anyway, see what you think...we are all different and all had our personal journeys

    this was and is mine

    gammaraygary.wordpress.com/.../

    vatch

     

  • Hi Gary.

    i read your blog,it is very interesting and I'm sure it has helped others to cope with the same type of cancer.being told you have cancer is devastating,being told you have throat cancer is beyond devastating,as most of us would realise the implications of that,of not being able to eat,or swallow,of the possibilities of being tube or peg fed and so on.at least I did as I knew a few people that this had happened to.including my wonderful uncle who had died from oesophageal cancer.the doctors didn't know where the primary site of my cancer was at first,the cancer they found was a secondary one,in a lymph node in my neck.i remember standing outside the Royal Oldham hospital in July 2012 breaking down,and saying to my parents"they think it's in my throat don't they?"a PET scan the following week in a central Manchester hospital confirmed this.i remember phoning my 33year old son(once we had the full diagnosis)from the hospital to tell him it was throat cancer,in the right hand tonsil.he was quite calm at first and then said"but how the f... can you have throat cancer mum,you've never smoked."of course we had never heard of the HPV virus back then.awareness of this is hopefully getting better,and I have noticed that there are posters up in my dentists about this,I just hope people read them.but then you always think these things won't happen to you.i believe tonsillar squamous cell carcinoma is quite rare,indeed my GP said I was the only patient he had ever had who had it!well I always did like to be different to anyone else!haha.the treatment however I found unbearable at times,and there were many occasions when I wanted to halt it.but I had just been blessed with a beautiful grandson,and this bouncing baby boy gave me the reason I needed to carry on.so to everyone going through this hell all I can say is,stay strong,be positive,focus on the people who love and need you,and pray if that's what you believe in.

    kind regards

    karen