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Lele88
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Hi there, 

 

My mum (just turned 64) has been diagnosed with colon cancer stage 4 1 month ago. She has metastases in the liver and lung. Doctors say that the metastases in the lung are only 2 and not a big problem compared to the liver metastases. Currently no surgery is possible  but we are hope ing to shrink the metastases in the liver (all segments have metastases currently) in a way that surgery will be an option, I know the likelihood is low. She is on folfoxiri  with the antibody panitumumab  (wildtyp). Is anyone in a similar situation / getting the same therapy?

 

Happy to hear from you.

 

Regards,

Lea 

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    Hi Lele,

    I see that this is your first post on the forum, so first of all, let me wish you a very warm welcome to Cancer Chat.

    I am so sorry to hear about your mum’s diagnosis. I am afraid that the only experience I have of liver cancer is with both of my parents and, even these two cases were very different from one another. Mum started off with breast cancer, but it eventually spread to liver, lungs, brain and bones. It was very hard going and I feel for you now.

    If you want to contact others with the same sort of cancer, I suggest that you go to the search box on the blue banner at the top of this page. If you insert liver cancer, you will bring up previous posts on this topic. You could also try putting Folfoxiri  or Panitumumab  for additional posts.

    I hope that you find this useful.

    Please keep in touch and let us know how your mum gets on. We are here for both of you whenever you want to talk.

    Kind regards,

    Jolamine xx

  • Offline in reply to Jolamine

    Hey Jolamine,

     

    Thanks for your post.

     

    I still cannot believe what happened..

    Regards,

    Lea

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    Hi Lele88, My mom has also (3 weeks ago) been diagnosed with liver metastasis, we are yet to learn whether is is definitely colon cancer, as after multiple scans they have found nothing on any organ other than some thickening in the large bowel. We have been told that often some primary cancers can actually be so small they are undetectable! My Mum also has liver metastasis which are scattered so have been told she is inoperable and it is incurable, she started chemo on Tuesday, CAPOX regime which is Oxaliplatin with Cep tablets 3 weeks on and 1 off. She is also on steroids as she had lost a bit of weight and ideally needs to put on about 1 stone, this is giving her a boost in terms of her appetite. So far so good, only side effects are extreme tiredness. Like yourself we were completely shocked as she is totally healthy, and had no symptoms other than some tiredness which she put down to spending 3 weeks on holiday over Christmas and than sharp pain in the chest which sent her to A&E for a scan which then revealed the abnormalities on her liver. My Mum is 54 and as I said before very healthy, so I am hoping she responds well to the chemo regime, I myself am 29 and I visit her as often as I can although living 40 minutes away. It is interesting to learn of different regimes, I believe they can try different varieties depending on awhole host of things suh as location of the cancer and spread etc and I am trying to do my research. Its been good to read your post as we seem to be in a similar position. How are you coping? I was horrendous at first but have been lucky to find some strength from somewhere and just taking each day as it comes and trying to live in the moment! Thinking of you and your lovely Mum Stacey
  • Offline in reply to essjay_88

    Hi Stacey,

    Oh wow that sounds pretty similar. I am 29 too.

    I feel like I am still in shock and for me my mum looks still fine from the outside. But the first round of chemotherapy has been pretty hard for her,not much throwing up,but she has problems to eat or drink, we try to bring her food or drinks all the time but she refuses them most of the time.Really worried she doesn't get enough flouid and food.you mentioned steroid ?what exactly is ur mum taking/how often? 

    My mum is really tired too and has problems to walk up the stairs lately.Most of the day she is in bed. Not sure how tired is normal, worried her blood gets to too bad (tiredness as a sign that the red + white blood cells are going done). My mum is a vet,which makes things not easier because she understands a lot what's going on.

    Same for my mum,she had pain in her side and they found out then it was the liver metastases creating it.

    The chemotherapy + the antibody she gets we have been told is very strong (-> high side effects) but we are hoping to get a high response rate with this treatment. 

    Where are you based?I am from Germany but reading in this forum to also get an idea on other countries treatment.read about a liver surgeant from the UK.

    Nice to hear from you Stacey. 

    Lea 

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