neuroendocrine carcinoma

Just last week, I lost my mum to a very short battle with cancer. We only found out she only had cancer on the 16th January and by the 19th January she died. We were only told that she died of cancer but they believed it to be pancreatic cancer as she had previously been diagnosed with pancreatitis. But me and my dad received a letter saying that she died of neuroendocrine carcinoma. However me and my dad are angry that they were not able to find this on the many scans that my mum had over the three times she was admitted into hospital. Also as I’m only 16 years old, I feel as if I am greiving in the wrong way, to me it feels as if my mum has just gone on holiday at the moment, whereas for my dad he is heartbroken as they were together for 20 years and never got married. Am I wrong to feel as if my mum has gone on holiday, or is it maybe a natural instinct to think that?

  • Hello emilyo.  So sad about what has happened.  Sometimes I think our minds put a defence mechanism in place to shield us from such awful events; in your case the suddenness of what has happened - it dropped into your life suddenly and then took off like a steam train crashing (if that makes any sense).  It was all far too much and far too quickly.

    I cannot really comment on the scans - like others on this forum I have no medical training but I hope the Nurses might pick this up and respond.  I know it does happen that scans do not pick up everything but beyond that I really cannot comment.  And possibly some of your anger over this might also be part of deflecting your shock at your mum's death.  I say "possibly" because I am no expert in such matters.

    I hope your family stick together and talk to each other about your feelings.  You might also consider ringing Cruse Bereavement Care (Freefone 0808 808 1677) to help you make sense of what has happened; they are long-established and experienced.  They can help you straighten out things in your own mind.

    Be kind to yourselves, both you and your dad.  You have had an awful shock.

  • Welcome to Cancer Chat Emily although I'm really sorry to hear about your mum and on behalf of everyone on the moderation team I would like to offer you our sincerest condolences.

    Please be reassured that there is no right or wrong way to grieve and that everyone copes with loss in different ways. I have included some information we have on our website about coping with grief as well as two articles from a website called riprap which shows the greiving process from a young person's perspective. Just click here and here to find out more.

    I hope this offers some comfort to you at this time Emily but do keep chatting to us here when you can.

    Best wishes to you and your dad, 

    Steph, Cancer Chat Moderator