hi, my name is John. My wife was diagnosed with glioblastoma 16 months ago. She had surgery in 2016,the Dr got 65%of the tumor. She’s gone through chemo & radiation. She also went on the ketogenic diet when she was first diagnosed. The tumor was pretty much gone after that. Then in May of 2017 she had a facial seizure. She went back in the hospital and had another mri. It showed the tumor was back. So her oncologist started avastin without temodor because her blood counts are to low to handle the chemo. In December she had another seizure. Right after that one we were able to get her the novocure Optune. She’s had it a month now but I feel she’s started to slip away. I’m her husband and caregiver. I’m with her 24/7. All she cares about is sleeping. Her appetite is diminishing and she doesn’t want to drink much. Her voice is a whisper. We have started homecare for her because she’s so weak. Also she has a major deficit on her left side from the original tumor.weve been married for 41 years. It’s really hard to watch her slipping.
