I hate this

My husband was diagnosed with oesophageal cancer June 2017. October he had his oesophagus removed entirely along with the tumour. The op went well but he suffered complications and was in hospital until just before Christmas 2017. All was ok until April when he started to feel immense pain again despite being on morphine still. We were told that it was nerve pain from his broken ribs rejoining but by Oct 2017 he was in agony and I called an ambulance . Then he had a scan at last and we were told the cancer was back this time in the liver , lungs,abdomen and that he had just 2-4 months to live. Obviously we ( my husband ,I and 9 year old son )are devastated . He was offered chemo to perhaps give us a couple more months and tolerated the first two sessions but became to sick for any more due to swelling,skin probs and low platelets. We went last week for another scan. He has large clots on both lungs and any further treatment is now deemed too risky for its worth. We find each other snapping and being cross. I should know better for ****'s sake. I'm so so so sad and not how I want to be at all with him. When he is gone I will remember how I've failed. I truly hate this. I often think if it wasn't for our son I would gladly trade places.

  • Oh amanda ...  nothing l say will help you feel beter ... but please be gentle on your self , when you snap at each other, its probably the cancer you both want to snap at .. and as we cant do that, it comes out in other ways ... so the only thing l can do is send you a vertual hug to you all ..

    What a nasty year this is turning out to be .. and it's only January...  my thoughts are with you all ... Chrissie xx

  • Thank you Chrissie you have made me feel better just by replying x Yes it's the cancer for sure,we were so happy before. Hugs back x

  • Amanda

    I can only second what Chris has already passed on and our thoughts are with you and your close family at this time

    this is a difficult time for all of you, but try to find time for both of you to get back to what brought you together in the first place .... yes there is a lot going on and a lot to deal with ... but it’s important to sometimes say “what the hell” and just have some valuable and much needed together time, whilst you can.

    shout whenever you want there is ways someone on here ready to listen and many have experiences like yourself

    my thoughts are with you all at this time

    vatch

     

  • Please don't berate yourself. I felt the same way when I lost my mom last year. I felt as though I should have done more, been more cheerful around her and be there for her every day. Every day she thanke me and when she passed away she was smiling.

  • Thank you. I'm sorry for your mums passing . I know we should be making every second count and enjoying the time together as a family and making memories but it's all sickness and poop and confusion and frustration so much of the time. its like living with a stranger sometimes when the confusion is bad . It's all such a totally different and alien life for us all. 

    I seem like a negative nelly. Forgive me. I am still being strong and appreciate all the positive feedback thanks x

  • Please add my commiserations along with what the others here have already said.  Life can turn on you so dreadfully sometimes it is a wonder you can hold on to any of your sanity.  You are probably exhausted as well as anything else and it is surprising that you are coping at all.  Life cannot be much crueller. I hope you will come here to air your sorrows and worries and I wonder if you have any help for yourself.  Please be assured that we will do what we can by reading what you are telling us and just generally trying to help by being there for you.

  • Thank you Annieliz x 

    Our whole town has been behind us for sure any time I leave the house people ask after him and although our family is far away we have their support as well as  the district nurses and our Macmillan nurse. We are extraordinarily lucky despite the terrible curse of the C. I do find it hard to ask for help I admit though. What do I ask for after all? There is only one thing I want and sadly nobody can fix that.At the moment I can cope. I rather feel that if I motor on and keep my head down somehow it will all just go away. My husband is only 52 and I'm just 40 ( coming on 90)

    I feel actually sick when I think how things used to be I yearn for it so badly. 

  • I was thinking that the help that could be given was having people with whom you could talk and share your stress and sorrow.  People can be extraordinarily helpful if you let them.  I feel you must be tired so if people say "Anything I can do to  help..." then let them.  Cooking meals for you,  doing the ironing (if you do iron, I confess I don't do much of that), any time-consuming tasks that need doing so that you don't wear yourself out.  And talk, talk about your feelings.  If  you are not used to doing that then you have made a start by posting here.   For the sake of yourself and your family don't run yourself ragged.  Take care of yourself so that you can help your husband. 

  • Thanks Annieliz. I should take your advice I know but that means giving up some control which I'm rubbish at. Must try harder x