Hey Chaz

Hope all went well with the PEG and enjoyed the sedation. 

In a similar manner my Christmas year before last was spent undergoing daily treatment. 

I was glad of mine and was put to good use. Hydration is the key and was able to pump plenty of fluids overnight during the ten days or so that the radiotherapy was really taking its toll on my throat. Great advice from my oncologist. I also pumped ‘Huel’ down mine as an easy way to get good nutrition. I was not keen on the protein shakes provided. The hospital nutritionists were a little dissaproving of the Huel but turned a blind eye to my efforts. It certainly worked for me and glad to have the PEG removed about a month after treatment finished. 

What is your diagnosis? Do you have a good support network?  

Wishing you all the best for the weeks ahead. 

Paul

Hi Paul

Bad news as they couldn't fit the PEG!!

Might have to go down the RIG route.

Just wondered if anybody else has had this problem plus can you have a PEG fitted during radiotherapy and Chemotherapy treatment???

Awaiting answers from hospital so thought I would ask on here??

Chaz 

Hi Chaz, 

I had a peg tube fitted and it didn't go particular well and was taken out and I went through treatment and recovery without one but I wouldn't recommend it ..

having a rig fitted will be fine and in some ways safer as they can see where they are going ! Lol

im sure they will either get you in ASAP or they will put it in early during treatment ...

I have heard of people getting them fitted part way through..

I wish you luck .. stay positive ...x

im two and a half years in remission..tonsil tongue and soft palate hpv positive ssc...feeling good .. xx

Hi Paula

Thank you so much for taking the time to answer and it's put my mind at rest a little!!

I just don't want Chemo/Radiotherapy to be delayed as the sooner it starts the better.

So glad you are now well on your way and thank you again

Regards

Chaz

No worries , I'm in Nz on the night shift ! 
 

I feel you regarding getting started the waiting is the worst..

paula..

Hey Pavaloa!

You're definitely in the right place for advice, help and support. If you can scroll back though this thread, there's a lot of info and links to personal blogs. 

I started this route on 31st March and never missed a beat for appointments and treatment, through all of the 1st lockdown. My staging was T3N2M0 and right now, some 6 months post-treatment, am recovering well. 

If you do have 16+ the survival rate (at 5 years) is excellent. But as someone wrote to me: 'There's no elevator option'. Never a truer piece of advice!

All the best from nearby Gloucester

Woz

Hi

Cheers for taking the time to answer and understood most of it  

Not sure how a find old threads but will keep looking.

Glad all ok with you!!

Regards

Chaz

Hi Chaz

Scroll back through the posts by clicking the number blocks which should be under this post (you should see page 1 to page 28 - which is this latest page). You could also try to set 'Show per page' to 30 or 50, that will cut down on the amount of clicks).

Click this link to have a read of my blog that has documented my journey through this.

Take care

Woz

Yes a fair few scots here.. 

i live in tauranga in the bay of plenty on north island..

 it's a beautiful place...

xx