Squamous Cell Carcinoma of the Tonsil.

Hi, Anybody else with this cancer? I was diagnosed 1/12/17 and treatment started 18/12/17. Entered a trial, 25x weekday daily radiotherapy plus 5x Chemotherapy. OK until start of week four, but had to start co codomel last night. Appetite has gone and forcing the fortysips down is a real problem, but have found thin porridge with honey to be good. Really find pureed meals inedible. I know it is only going to get worse over next four weeks. Any tips or thoughts. Thanks.

  • Lynne

    hows things with you ... ok I hope

    vatch

  • Hi Vatch... I'm ok thank you just nausea nausea nausea! Lol...peg came out as infected and I'm still eating at the moment!.. How are you doing? Any news from your follow up? 

    Paula..xx

  • Hi there, I’m almost half way through treatment, on week 3, today is the first day I’ve struggled to eat . My throat is feeling very painful when I swallow. The tiredness is very draining also. Just taking it day by day as things change all the time! X

  • Hi Vatch, nausea has pretty much passed, except when I try to swallow anything other than fortijuice or water. CT scan in about four weeks - earlier than I thought. Will report back! Hope you are well. John.
  • Hi paula

    oh dear sorry to hear about the peg ... have you had it re-inserted? ...that’s an interesting sensation.

    so how many sessions down on the radio therapy are you

    are you having chemo is this what is making you sick?

    im not sure if I was just lucky with the chemo drugs I had or if it was that I stuck the regime on when to take the drugs .... I suppose both helped ... but if you have not already done so and it’s the chemo drugs making you sick then mention it to you medical team ASAP as they can change drugs .... but I’m sure being a nurse you have already addressed that one

    as for me no news yet ... so all good I suppose

    keep going girl the roll-a-coaster ride begins

    vatch

     

  • Hi lynne

    well done for getting this far .... nearly half way

    as for the tiredness if you have the support around you use it ..... and sleep .... you may think you are superwoman but your body is actually going through a lot and does an amazing job of hiding it from you .... until you forget what you are going through and you body reminds you .... errrr no mate it’s time for me to rest

    week three should be a week of many changes, what you liked or could eat on Wednesday you’ve gone off by Thursday. And trying to find a suitable luiquid to drink is just as much fun ..... you might start to find still water become too harsh, so I would boil water and let it cool down ..... Chinese green tea was also brilliant .... I can’t stand the stuff now .... but all that is later on to look forward to

    hang in there and let us know how you are getting on when you can

    vatch

  • John

    thats great news, at leat you know what you can keep down and if you are lucky enough your taste might not have come back enough to realise how bloody awful the taste of fortijuice is

    on the upward slope ... keep crawling up there

    im fine too thanks for asking

    vatch

  • Hi Paula, glad you are keeping your sense of humour. Carry on smiling. John

  • Hi Lynne, nothing really to add to Vatch's comments. Keep positive. John

  • I’m struggling to eat much at moment, I have thrush in my mouth which isn’t helping matters! And I’m drinking mainly milk and water at the moment, I was a fizzy juice addict before but I can’t stand it now . Pretty much surviving on weetabix for now !