Depressed and frightened

Hello,  after suffering from lichen planus in my throat for many years and endless dilatations, I had biopsies in July as my throat had been very sore for around 18 months.  The results were high grade dysplasia (pre-cancerous cells) in my oropharynx area.  Every time I swallow it hurts and more so with food.   The doctors have told me that the dysplasia could turn into cancer in the future and I am waiting to have treatment called EMR (endoscopic mucosal resection) which is really worrying  as the whole circumference of my throat is involved.  I wonder if anyone else has had this treatment and can give me some reassurance.

  • Glad to hear the news that you are okey now and back to us. All the best.

  • Hi Christine this is just a brief message to.let you know im still thinking of you and wishing you well.I haven't heard from you in a while and hope everything is going ok.

    Best wishes james

  • Hi James

    Thanks for your kind message and I was going to post soon.  I finished my treatment last Wednesday and rang the bell in reception as most people do when they've finished.  It was a big relief and a bit emotional as well.  I wouldn't have got through the radiotherapy treament without the patient support ladies who were wonderful.  The mask I had to wear made me feel panicky and claustrophobic but luckily the treatment time was only two minutes except when I had to have a scan as well.   I saw the doctor the day after and as my weight has remained stable since my last chemo I don't need a nasal feeding tube yet.  I have had no appetite since my last chemo and am literally making myself eat and drink as I'd rather do that than have a tube.  The doctor said that the radiotherapy would carry on working for a week or two and then my throat would start to be more comfortable.  At the moment it is very sore and I can hardly swallow without pain.  I've got lots of medication and my daughter said my kitchen looks like a pharmacy!  Just drinking supplement drinks at the moment and things that go down easily.

    How are you and have you heard any more news about your treatment?  Did you have a nice holiday?

    Thanks very much for your message.

    Best Wishes

    Christine

  • Hi Christine

    Yes I had a nice holiday in January and im actually in benidorm at the minute lol.insurance was a nightmare and because im awaiting a date for halo treatment most companies wouldn't even cover me until ive had the treatment.so I had to go with direct line and exclude cover for oesophageal cancer.im hoping to have halo in the next month or two.has all you're treatment now finished and have the doctors given you any indication if its working.the second ct scan results on the nodules in my lungs came the day before I came on holiday,they showed that there was no change in size so the doctor said there is a good chance that they are just scar tissue from an old chest infection.but I will have another ct scan in six months.

    Best wishes james

  • Hi Christine hope you are well

  • Hi James,  I'm doing ok thanks.  I finished my treatment over six weeks ago and lost my voice in the last week.  I couldn't speak for at least 3 weeks which was very frustrating!  My throat was very sore towards the end but is much better now and I have got most of my appetite back, although as a result of the radiotherapy I now have a stricture which I'm told is very common from the scar tissue.  I'm still managing to get soft food down and my weight has remained stable which is a blessing as I was dreading having a feeding tube through my nose.  I saw the doctor last week and she was pleased with how things have gone.  I will probably need my throat dilating sooner or later and they may take biopsies at the same time.  I am due to have a whole body CT scan at the beginning of August which will be 3 months after my treatment finished.

    Please let me know how things are with you.

    Best Wishes

    Christine

     

     

     

  • Hi Christine im so glad to here that you're treatment has finished.hopefully it will be worth it you'll get back to some sort normality soon.have the doctors given you indication if the cancer has been cleared or do you have to wait until the biopsies have been taken?.im still waiting for a date for halo therapy but I've got an appointment with one of the consultants on monday,so maybe I'll hear something then.but at the moment im feeling fine.and would just like to get my treatment finished.I was told that after halo and if my next lot of biopsies are clear I would be able to go back to surveillance scopes of six monthly or yearly.speak to you soon.

    Best wishes james

  • Hi christine I haven't heard from you in a while and hope you are keeping well.I myself received a letter today saying that on the fifth of October I have an appointment in the city hospital for halo treatment.but two weeks before that I have to go to another hospital for an endoscopic procedure to remove any lesions in my oesophagus.(whatever that means).I've had all my previous treatment at this hospital so I dont know why I have go to the city hospital for the halo treatment,but I have to phone on monday to accept the appointments so I will ask then.I dont know why but im a wee bit apprehensive about these next two appointment s but I know they have to be done.please let me know how you are keeping.

    Best wishes james

  • Hi James,  nice to hear from you and it’s good that you now have your next two treatments arranged. I think it’s normal to feel apprehensive, I did too before all my procedures. We just have to put our trust in the doctors and try to be positive which can be hard sometimes. 

    I had my throat dilated and biopsies taken just over a week ago. My swallowing had got so bad I was just on liquids really and the special supplement drinks. It’s a little easier now to swallow but my throat has been really sore probably due to the biopsies which doesn’t help. Also my voice has still not come back properly but that may take time. I’m due to go in again on 10th Sept for a further dilatation but this Friday I’m seeing the oncologist for the results of my scan and biopsies. Scary times and I will be really apprehensive but have to face it.  

    I hope your treatments go well and please keep in touch.  

    Best wishes

    Christine

     

     

  • Hi Christine good luck with alll you're biopsy results.hopefully all the problems you have been suffering are caused by the treatment and will ease over time.are you expecting any further treatment?.please let me know how things turn out for you.

    Best wishes james