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Traumatic aborted colonoscopy - now long wait for CT scan.

Hi there

I was sent for an urgent colonoscopy as my GP was worried I might have bowel cancer. I took my moviprep Monday and Tuesday morning and then went to Hospital. I was not given an appointment time, only an arrival time. I was taken to a small room at 2.20pm and fitted with a canula, which was quite painful. I was then left in that room by myself until 4.00pm. I was getting increasingly anxious from the waiting and I wasn't allowed to go to reception to see my partner, and he wasnt allowed in to see me. At 4.00pm a nurse came to tell me I was next, and I was taken to the exam room at 4.30pm. Since I was very anxious I asked for the maximum sedation and they gave me 5mg mizadolam and 100ug of Fentanyl. I felt a very slight drunk sensation, and then it passed. I was completely lucid, and recall the whole horrific ordeal. The pain was indescribable. I was sobbing and pleading for more painkillers. They decided to stop, which made me even more upset because I didnt want them to abandon the procedure, just give me a GA or more painkillers! The doctor said he saw the left side of my colon and that it was totally normal. I was allowed to leave after 10 minutes, and at no point did I feel woozy, sleepy or any effects that I had been told to expect from the sedation. They have now told me I need to wait 3 weeks to hear back about arranging a CT scan to view the side of my colon they couldn't reach. Obviously, I am really upset and quite angry - a) because the painkillers didn't work b) because the procedure wasn't completed and c) because I now have an anxious wait for the CT scan, if I even get it.

Has anyone else had this experience? Everyone I have spoken to said they didnt feel any pain, only discomfort. I'm now terrified of ever having the procedure again. Why didn't the painkillers have any effect on me? Can I ask for it again under general anaesthetic? What happens if they refuse the CT scan or I have to wait months for an appointment? Should I make a complaint to the hospital? I'm really unsure what to do.

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  • Hi So sorry to hear about your ordeal l have had several colonoscopys over the last 25 years and sorry to say it always hurts neither sedation or GS helps, l also have to have follow up CT Colongrams

    If it helps you at all my last procedure was on Wednesday 24th July 2019 & again l’ve got to have a follow up colongram. At least l have found out this time that my colon loops &  because the Dr persisted in trying to get passed the loop with the camera once again l had terrific pain.What l can’t understand is why on earth haven’t any of the previous Dr’s read my notes from my numorous other investigations l

     

    have what is called Splenic Flexure syndrome which is similar to lBS which I’ve had for a long time. l know this won’t help you but maybe if your pain is caused by your colon looping it might explain why. Best regards Jill

  • Hi Having read about the traumatic aborted colonoscophy I felt so relieved I wasn't the only one. I thought it was me being a baby. 

    I had movicoll yesterday the first one was OK carried out instructions to the letter. Second one I was violently ill and vomited the whole lot back up. I have never felt so ill. Plus the violence of it all there was no time to get to the loo etc. I had a rotten night. 

    Next morning my appointment was for 8.30am thankfully but I was still needing the loo and I felt sick. Despite me not having the second Movicoll the procedure went ahead. 

    Sedated I was given 50mg Pethidine and 4mg Midazolam plus oxygen through my nose. I was so scared but I drifted off until the next thing I know I was screaming. The Endoscopist said we will try again I just kept saying stop stop it hurts. I was never offered the gas and air although it was upon admission. I guess it wouldn't have made any difference. 

    Next thing I know he is saying "have to abort will refer for CT colon scan" . No explanation nothing. In all according to my discharge notes the whole thing took 15mins to the descending colon with biopsies taken. 

    I just wish I had been better informed about the movicoll and what to expect. I also think it would be so beneficial if we were given the option to have a general.

    Now I am scared stiff about having to do it all over again with the CT scan. 

     

  • Hi maybe there was some still in stuck . Its funny aur bowles are the thermometer of our emotionss as soon as we get stressed bang it all goes wierd ive crohns diseas a bit of stress and ime all over the place .you can ring cancer uk nurse helpline numbers on here they will maybe enlighten you better and relax hearing from a expert i still stand by what i said about going to gp . I know its  a difficult thing to discus but after 8 days in hospital all my dignity gone lol try not to worry its irobably the way they do it doubling up it may not be as bad as you think but go see your gp or you will get yourself in such a state with worry its so easy done .p

  • Hi again if you look on u.tube theres a realy cleaver guy explaining fibromialgia .so if you go on to u.tube put in dr eric berg fibromyalgia and his video will come up on the subject its facinating may explain your bowle probs but it your view that counts seemed very lodgical to me as my partner sufferd same thing as he said . It may help you or may not i took the trouble to look for you so look yourself eh best wish paul

  • I’ve just had my colonoscopy this morning which had to be aborted as they couldn’t proceed due to gamma loop(?).It was also very uncomfortable and painful. I’ve had this procedure 4 times over the last 16 years and the sedation has definitely got less and not been as effective. The first two I had in 2004 and 2006 I didn’t feel or remember a thing and took a while to come round after the procedure.

    The one I had 5 years ago I was unaware of things until I woke up halfway through and it was painful.

    The doctor who did it today did my first two and I commented that the sedation wasn’t as effective which he denied 5- I had 4mg of Midazolam.

    I too wil have to have a CT colonoscopy. I’m sure it would be more cost effective to increase the sedation rather than pay for expensive scans!

  • They dont listen at times you the consultant said i may need a coloscopy even after i told her they had to abandon mine as i had a loopy bowle same as you ive an apointment next week so if she says it again ime going to say dont you listen ct scan may show something it may aomething simple dosnt take much for aur bowles to act up even thoe i have crohns lifes not been easy and i found stress realy effects me thats why i suggested gp it may not be the cause of your problem but it certainly will make it worse i can tell your worried and can understand .i had to wait a month to find out if i had cancer i because of shortages of pathologists it realy got to me stopped sleeping even thoe i didnt feel worried its its subconsious stress that gets you i still would go to gp are you drinking 2 litrs of water a day lots of us dont and something simple like that can cause constipation .or make it worse .paul

  • Hello again

    Once again this is Harriett and I have never known this before but I had to re register yet again! My saved log in details were just not being accepted.

    Today I had my CT bowel scan!  My posts above descibed the experience I had with the attempted colonoscopy/very unsympathetic doctor and the pain it caused me. 

    Yesterday I took the doses of Gastrografin which were foul to taste but only a fraction of the amount compared to the awful Moviprep concontion.  I stuck rigidly to the liquied only diet and while I know the Gastrografin is not exactly designed as a laxative it certain had that effect but not until exactly 12 hours after the first dose yesterday morning.  I was beginning to think it was having no effect and my bowels did need clearing (only here can we talk about bowels and their contents!) but at 10pm last night things got going.  A little more this morning and my scan was at 9.30 so I was concerned I was not "clear" enough but the nursing staff assured me it would be fine.

    A canular put in my arm to take the bowel relaxant drug ( no dye was given) and then in went the tube to pump air inside me. The good thing compared to last time was the 3 staff were very nice and explained everything before it happened.  I have to say it was somewhat painful having my bowel inflated but with a few moans and groans I got through it.  The scan itself was quite quick and obviously entirely painless. I do not consider myself a wimp at all but if something hurts then it flippin hurts.

    All done and a cuppa drank then on my way.  The only thing now is waiting to see what  the scan shows as I had no symptoms whatsoever and this test was purely because a family member died recently of bowel cancer at quite a young age. I am now nervous to get these results but have to do 2 things:

    1. Try to stop worrying as I have no reason to think anything bad going on.

    2, Give myself a shake because in that hospital today I know I would have been among people with already diagnosed serious conditions or having scans which will show they are the unlucky ones. 

    I will be back here to announce (fingers crossed) a clear and healthy bowel.  Thank you for reading.

     

  • Hi Everyone 

    I have just received my results from CT scan and the aborted colonoscophy. (nearly 3 months).

    I have Ulcerative Colitis, which I believe is just in my lower bowel only. Thankfully not the dreaded C word. This was picked up by the biopsies which were taken from the lower bowel before I went into one having the colonoscopy. Interestingly I too suffer with fibromyalgia so could this be a reason for the severe discomfort during the colonoscopy like some of you have suggested?? Will remember to state about the fibromyalgia if I have to have one again (although I intend to plead for a general anaesthetic) . I never want to experience a colonoscophy ever again!!

    Just waiting now for an appointment with the gastroenterologist (will that be another 3 months)? 

    Good luck Harriet and all of you waiting for your results I wish you well. 

    Krissie

  • Thank you Krissie and I hope everything goes well for you.

    HarriettA

  • Hi well done Harieta you got it done .hey theres th wimps when it comes to endoscopys its a flippin invasive procedure i was in agony same as you i dont think they realise if the staff are uncaring it makes it harder for them to as we clamp up literally fingers crossed 

  • Hi

    I had the mediprep I suggest room temperature while drinking it. I have to say the colonoscopy was so painful I've just had it now I'm buckled up in pain from all the air and still haven't passed wind. I'm in debilitating pain daily anyway and said I don't need pain relief. My mistake Omg I'll be honest it hurts but not for everyone. I hope your results are clear try not to worry so much I do understand living with something daily isn't easy I can also become bitter. The staff and the surgeon was 100% amazing and cannot thank them enough. My results are clear thankfully...Not everyone feels bad pain cramps unfortunately we did I'm in tears writing this as the pain is horrendous...Take care all and good look with the results the gas and air didn't help me...I was also dosed on morphine prior also tramadol...

  • I've also fybro seriously? Is this why I was in horrendous pain I've finally eased off now the procedure was excruciating. Even with the gas and air. I told them I don't need pain meds because I'm dosed up already and suffer enough pain daily. I had the sigmoid months ago and that didn't hurt in anyway! Thanks for sharing. I warn anyone before a colonoscopy don't Google it I was terrified even though I relaxed. I hope your health is doing better now and things under control. 

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  • I've also fybro seriously? Is this why I was in horrendous pain I've finally eased off now the procedure was excruciating. Even with the gas and air. I told them I don't need pain meds because I'm dosed up already and suffer enough pain daily. I had the sigmoid months ago and that didn't hurt in anyway! Thanks for sharing. I warn anyone before a colonoscopy don't Google it I was terrified even though I relaxed. I hope your health is doing better now and things under control. 

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