I have stage 4 oesophageal cancer. I was diagnosed back in 2015. At one point I was declared in radiological remission but 3 months later I was at the other end of the of the spare trum when another PE Scan showed it had spread to 9 diffferent areas including other major organs. Despair and anger set it at that point and it hasn't much improved emotion wise. Eating and drinking is very difficult because of the main tumour so keeping myself healthy is a struggle every day. I'm on a variety of drugs from anti anxiety to morphene patches but it is a struggle.
Currently on a chemo break after last scan showed an improvement in some areas but still showing a spread to other organs but unable to fully enjoy the break due to exhaustion, eating difficulties, stress plus a broken collar bone. I'm having to pay for my secondary treatment because, about £60K per 9 sessions of chemo, because one of the drugs is approved by NICE but deemed too expensive for the NHS to fund. Our savings are being hit badly and that adds to the stress. But this drug seems to have had a positive affect so will have to find some more savings for another course if my oncologist says it will help.
Overall it's difficult to get my head round the fact that I'm dying but my wife and family have produced tremendous support.