Introducing myself

Hello everyone, 

I was diagnosed with rectal cancer with secondary in liver and also peritoneum disease a few months ago. It came totally out of the blue. In 2010 I was taken very ill and had my colon removed giving me an ileostomy. I was left with rectal stump and anus intact. It wasn't due to cancer. 

Towards end of 2016 I started to have discharge from anus including blood. I saw my GP who wasn't worried as she said discharge is normal. It is small amounts of mucus sometimes but not what I had. I kept going back and eventually saw a Colerectal Consultant. He arranged a CT scan which didn't show anything BUT the radiologist reported that there were some small cyst type lumps on my liver so as standard procedure I had a MRI. I received a letter from the surgeon to say CT showed rectum okay! After MRI everything went mad. I had urgent appointment with surgeon who informed me that the CT had been re looked at and it was noticed there was a tumour on the rectum. The MRI confirmed this and the secondaries in the liver. If it hadn't been for the liver would the rectal cancer have been found at that point? Think not. 

Before I had MRI result I had a sigmoidoscopy that was reported as okay but the nurse didn't go far enough. Had it redone by Consultant Gastroenterologist who found the tumour and said it's been there a long time. I'd never been scooped as it's not normal practise as I didn't have ileostomy because of cancer and don't have crohns or UC. 

The suregon had talked about surgery to remove the remove the rectum and anus, recover then have liver operation at a different hospital but everything changed with the peritoneum disease which the doctor just dropped into the conversation. My primary treatment is chemo. I've had two but had a gap in between as my bloods weren't right. Hopefully number three tomorrow after bloods later today. 

My family have been devastated but I've kept my emotions in check as that's the way I am. I've felt angry and very frustrated as the chemo really takes it out of me. My body won't do as I want and I hate it. I feel like there are two parts of me, chemo one and me. 

Sorry if it's a bit long. Thank you for reading. 

Daisy

  •  

    Hi Daisy,

    Welcome to Cancer Chat, although I'm sure that you would rather be anywhere else but here. I am so sorry to hear about all the confusion you've had. This must be really frustrating and annoying.

    I am sorry to hear that you are finding the chemo so difficult and hope that your third session tomorrow is easier.

    I have had two bouts of primary breast cancer - the first diagnosed 7 years ago and the second a year later. I am usually a very self-contained person and agree that I just don't know my cancer half, as it seems to have totally taken over my life these last few years.

    Stay strong and let us know how you fare tomorrow. There is always someone here for you whenever you want to talk.

    Kind regards,

    Jolamine xx

  • Hi Jolamine

    Sorry for not replying sooner just not been on the forum since joining feels a bit strange. You’ve had a tough time and hope you’re doing okay now? 

    I had third chemo and after delay because of bloods had fourth last week. Wasn’t too bad till yesterday and today. Get dizzy head and just feel yuk! Sound like I’m moaning and it’s not me I’m usually pretty tough. Just my body doesn’t seem to want to move or brain think, it’s so weird. Hopefully it will improve soon. Could be worse.

    I belong to another forum because of having my ileostomy and it took me a while getting into that. Now I try and go on when I can and try to help others as they helped me. Hopefully will do that here too. 

    Daisy

  •  

    Hi Daisy,

    I am sorry that it has taken me so long to reply to you. I have been on holiday and, for the first time in years, I didn’t have Wi Fi connectivity. Your chemo seems to be a real trial and I’m sorry to hear this. You have done well to get to your 4th session and I hope that you are feeling a little better by now.

    Your description of the way you feel is pretty typical for this stage, but it should get better.If your medication is not controlling the nausea, let your care team know. There is other medication which might prove more effective for you.

    It would be great to have another contributor to help people on this site. You will know from your experience on your ileostomy site, the commitment that this requires, but it is such a help to others, who are going through the mill that is cancer. I myself had such great help from people on this site when I was first diagnosed, that my contribution is my way of repaying some of the tremendous  help that I received at that time.

    Kind regards,

    Jolamine xx