Cervical cancer and recurrence

Hi all. Just to give you an insight on my story. In 2014 I was diagnosed with cervical cancer Stage 1b1. I was given the choice of radio and chemo or a hysterectomy. I opted for a hysterectomy as I wanted it gone. I asked could they leave my ovaries in as I didn't want to go through menopause. The surgeon agreed that he would leave them in should they look ok. I was happy with that. And I was pleased to learn that my ovaries had stayed put. As awful the recovery was I got stronger everyday and got on with everyday life. Early 2016 I started getting pains in my left side roundabout where your ovary would sit. I ignored them for a while and tried to carry on. Eventually it got too much and I went to the doctors not once but twice and was told I probably had IBS and an infection so was given medication and antibiotics...no They didn't work. When I went to see my consultant for my 6 month check up I mentioned to him that i was having pains in the area and he sent me for a scan. I went back a week later for the results only to be told that the cancer had made a 5cm come back on my pelvic sidewall encasing my iliac vessels and sciatic nerve and blocking my ureter causing hydronephrosis. I was so glad that i had mentioned the pain to my consultant!! I ended up with a nephrostomy and chemoradiation. 6 and half weeks of radiation and I only managed 4/7 of the chemo because there was always problems. I ended up in so much pain due to the tumour pressing on the nerves that my days were spent sobbing. No matter what pain relief I was given nothing worked. Eventually after many weeks of suffering I was given steroids which worked along with the radio. After treatment I waited 3 months for a scan to see if treatment was successful. The results showed that the tumour had shrunk only by 1cm however it is still encased in my vessels and nerves. My doctors decided to wait another 3 months and scan me again to see what the tumour is doing. This scan is on the 22 Aug. I'm hoping that it has continued to shrunk but in my heart of hearts I have a feeling it hasn't. The doctor has informed me that if it has shown any form of growth then I will be receiving further chemo which just to be prepared yes I will lose my hair and maybe targeted radiotherapy. The fight continues.....

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    Hi Cat,

    Welcome to Cancer Chat,

    I am so sorry to hear about your recurrence, but it just goes to show that we know our own bodies better than any GP. How fortunate it was that you mentioned your new symptoms to your consultant.

    I hope that all goes well at your next scan on 22nd. Please keep in touch and let us know how you fare.

    There is always someone here whenever you want to talk.

    Kind regards,

    Jolamine xx

  • Hey Cat0403

    I'm sorry for your recurrence and the pain and discomfort you have experienced. It is good that we really get to know our bodies and we must listen to them always. My original cancer was endometrial and I had a full abdominal hysterectomy in November 2014. Thought that was job done until August 2015 when a registrar spotted something suspicious during a speculum examination. MRI, examination under anaesthetic and biopsy found a lump at the top of the vagina. The 'suspicious' thing the registrar was a harmless nodule, so the tumour was only found because of that. Radiotherapy and chemo seemed to work as in May 2016 I was told there was no evidence of the disease. In October 2016 I had a strange niggling sensation I'm my pelvis and immediately knew it had returned. After investigation it was confirmed it had indeed come back in the same place. I think that when you have had cancer you just know when something is wrong and that it has come back. Still undergoing treatment and staying hopeful and positive. So ladies and gents listen to what your bodies are telling you, don't ignore the signs.

    Much love LynneF X

  • Hi cat, 

    Im new to cancer chat and was looking for someone in a similar situation as me to chat, share ideas and get advice. It seems you have gone through a very similar experience! 

    I was diagnosed in 2014, at stage 2B. It's been a very long journey and had lots of different treatments. Sadly I can't have the hysterectomy due to the Cancer being on the outer tissues :( 

    Im in terrible pain with my sciatic nerve also and find it very hard to sit down (this week I've had the garden chair in to try)! My leg & foot is swollen (lymphedema). Mine is on my right hand side.

    I have been offered steroids if the pain relief I'm on now doesn't work. Did you have any side effects with the steroids? 

    I initailly had 6 weeks of radiotherapy with a mild dose of chemo once a week in 2014-15. brachytherapy Dec 2014, stronger dose of chemo oct 2015-Jan 2016, then stereotactic radiotherapy (targeted) at the royal Marsden, London Aug 2016 and it's still there!! I'm having another course of the strong chemo, starting next wk. Not sure if it's a good or bad thing that I know what to expect! 

    Ive also been to discuss trial drugs in London, which I'm very reluctant as there's only a 10% chance it will work. I have mixed feelings about it at the mo.. 

    ive never heard of the chemoradiation, maybe I should ask if I could have that.. 

    if you're worried about losing your hair, have you considered the cold cap? I'm asking if I can have it next wk. Although it only works with certain types of chemo. I hate being cold but can't stand the thought of losing my hair again. It's took me 18months to get it into a style..

    good luck for the 22nd. Stay strong & Keep fighting

    Best wishes 

    lisa xx

  • Hello Lisa,

    i just found your chat re a google search.I was wondering how things have gone for you, as I am just string on a similar journey after being told my CC has returned after 7 year clear, donoknow what stage yet- I’m waiting for appointment for internals.

    Best wishes,

    a fellow Lisa