Good days,bad days

I was diagnosed with bladder cancer at the end of December last year,which had also spread into my prostate and then following a scan in March they discovered that the cancer has spread into my sacrum(bones at the bottom of my spine) and so was deemed 'Untreatable' and so they stopped the chemo and the planned op to remove the rest of my bladder and leave me with a stoma.Currently having some immunotherapy and my next scan is mid July.Don't really talk in depth to anyone about it and I'm always trying to make light of everything, but deep down I'm afraid of dying. 

  • Hi Enfieldbornandbred and welcome to Cancer Chat.

    I'm really sorry to hear your cancer has spread and chemo and surgery are no longer an option but hopefully the immunotherapy will help slow things down. I noticed you said your next scan was this month, do you have a date for your appointment? Waiting can be tough sometimes so I do hope it's sooner rather than later.

    I'm glad you've joined as there are many members here in the same position as yourself who will really understand what you are going through at the moment and hopefully some of them will post soon to offer their support and advice. Post as much as you want or need to Enfieldbornandbred and remember that we are always here to support you every step of the way.

    Kind regards, 

    Steph, Cancer Chat Moderator

  • Hi Steph,my name is Mark :) Many thanks for your reply. I've been very lucky with my support network,I have a key worker,a hospice nurse,a district nurse and a lady from McMillan.I always feel that I don't want to waste their time when they visit,or call me,as I know there are a lot of people in a worse condition than I am at the moment,so I don't really talk about it in any great detail with anyone,except to usually say I'm fine,with no pain at the moment.I didn't want to know what my life expectancy was,having been told the cancer had spread back in March,but I worry most of the time now as to when I might actually go.I have read some stuff on the Internet,but reading things gets me even more upset,so I tend not to read too much.My next scan is on the 12th of this month and like the one in March,I'm hoping the results come back very quickly,I got told the next day that the cancer had spread.I try to laugh everything off and make light of it,but I spend a lot of time thinking 'Is today the day' I am hoping to get some counselling via the hospice soon and I have just started going to day hospice,which is once a week.