New to the forum

I'm 57 and recovering from partial radical vulvectomy due to EMPD of the vulva. Excited to find a group of others with this rare cancer. 

  • Hello gae_c, 

    Welcome to the forum! :) 

    I hope that your recovery from surgery is prgoressing smoothly. I know that we had a couple of ladies post on the forum a few months back who had had similar surgery and so I thought I'd try to link you up with [@Racheal]‍ and [@Carolw10]‍ . Although it's been a few weeks since either of them were online, you could post in their threads on the forum and hopefully they will recieve a notification and pop by to say hello to you. 

    Best wishes, 
    Jenn
    Cancer Chat moderator

  • Hi

    Sorry not been on for a while. Yes I had surgery,was an 11 day fight in hospital but did it,was also told they got all the tumour but high risk of it coming back grrrrr

    Unfortunately I have lymphedema now betweey legs,also in both groin areas,my left knee and ankle. Can I ask is it normal too get like a tingling sensation in the feet and also cold feet? Just this started yesterday.

    Apart from this I'm fully recovered and back at work shows checking these things early we CAN BEAT this nasty disease

  • Hi Racheal, 

    That's great news that they managed to get all the tumour although no doubt frustrating to hear that there is a high risk of it coming back.

    I'm sorry to hear you have lymphoedema in the lower part of your body now. I know you're wanting to find out more about this so I just wanted to stop by and give you our cancer nurses telephone number so you can chat to them about this next week. Their freephone number is 0808 800 4040 and they are available Monday - Friday between 9a.m - 5p.m. Do make sure you chat about this with your medical team or GP as they should be able to help with this as well.

    Kind regards, 

    Steph, Cancer Chat Moderator