Husband's prostrate cancer & secondary bone cancer.

Hi everyone. I just need to know that we can get through this. We've been married 43yrs, two daughters & five wonderful grandchildren. 

Three weeks ago, my husband was diagnosed with prostrate cancer and secondary cancer in his shoulders, spine and both hips. He's been suffering from back pain for a while, we all thought he had just pulled a muscle, oh I wish!!! He's had two high dose injections of female hormones which have really helped him with the pain. He had a prostrate biopsy on Wednesday, now he has to wait up to 4wks for his results! Awful time for the whole family. We've no support from the hospital & none of our questions have been answered. We've been told we just have to wait for the results. Anyone else been left like this? 

Does anyone have any advice to help us get through the next few weeks of not knowing what is around the corner?  

  • My dad was diagnosed with aggressive cancer last summer with secondary bone mets in lymph nodes, spine, ribs, pelvis and sternum. He started on the injections and we were kind of just left until December when he thought he pulled a muscle in his back but was in agony. Turned out to be spinal cord compression and he had to have radiotherapy on his spine. With the bone mets in your husband's spine, you need to familiarise yourself with the signs and symptoms of MSCC as you need to take urgent action if you suspect he has it. Since December my dad has been on morphine for the pain and Macmillan are wonderful. My dad didn't seem to be in pain till this but he recently admitted he was and thought it was old age (he's only 66). Once you get results, it might be worth asking your gp to refer you to Macmillan so they can discuss pain relief if your husband is already in pain. I've been on lots of cancer forums and these hormone injections can work for 2 years plus then there are other chemo tablets which can work for at least another 2 years. I'm so sorry for you all that you have had your world turned upside down but know that there is help and support but unfortunately, you kind of have to ask for it and push a little. Can't fault the NHS though, stretched to their limits but still amazing. As for the waiting game, the results may arrive quicker than you think. We were told 2 weeks for biopsy and it was a few days. Fingers crossed it won't be long for you x
  • Yes hi exactly our experience to dad had prostrate cancer his bladder stopped working last year in march we were told we would see his specialist five months later we see someone after test we were told it had spread to bladder and bones spine ribs and pelvis  tht was in October we were shocked sent home with no advice or anyone to talk to dad was taken in to hospital

    with septis last month to find out its now in lungs lymph nodes and is now at home with end of life palliative care we now how the support of nurses but for a year we have had nothing no explanations nothing u are entitled to a specialist nurse to talk to I've recently found out we should of had s lot more help . So do ask The Mcmillan nurses what support there is out there for you Hun x

  • Hello, So sorry for all of you. I have been in your position although my partner had a brain tumour. My advice would be to contact the local hospice and see if they offer the hospice at home service. They reacted very quickly (within hours of ringing them)and they also pulled into line all the other help and services. They provided nurses at our home who then acted upon our behalf to make sure the other agencies were doing their jobs. Macmillans are also very good and quick to respond. My love to you all, Emma