I am just checking whats out there but not sure what if anything i need at moment.
I had hysterectyomy for fibroids 8 weeks ago. at my 6 week follow up i was told the hystology found low grade stromal sarcoma. - that was a massive and totally unexpected shock. the last 2 weeks ive lived in a bubble waiting to hear what if anything needs to happen now. my husband was with me at the appointments and i chose not to tell anyone else until we knew more. I had a melt done after 4 days but rang macmillan helpline and a palliative care cNS Ive worked with and have confidence in. I just needed to let the tension and upset out to enable me to keep pretending. its been a stressful 2 weeks but easier pretending everything ok rather than answering questions with no answers.
Now Ive been told the CT is clear and need nothing more doing. I will have 3 monthly follow ups. I have been offered tel number of oncolgy CNS. now i feel i have my life back and it feels a bit surreal. the hospital staff Ive met have been fantastic- very compassionate, genuine and professional.
I think things are all good now and having waves of relaxing and letting go but being mindful to stay well
