Hard times just been diagnosed with high grade ewing sarcoma. Really scared anybody else had ewing sarcoma.back to see oncology next week for treatment plan. The sooner the better i say.
Hard times just been diagnosed with high grade ewing sarcoma. Really scared anybody else had ewing sarcoma.back to see oncology next week for treatment plan. The sooner the better i say.
I was diagnosed with Ewing’s Sarcoma in November 2018. Started treatment in December.
VIDE , Radiotherapy then VAI.
VIDE is done
Radiotherapy will be finished on monday, then it’s time to finish the treatment plan with VAI.
how are you?
How did you find the vide. I can tell you the vai is a walk in the park compared to the vide. I finished my treatment 1 nov 2018 had my second check up today all good next review is in 3 months.
Im sorry just seen your post now. Hows things x
That’s so good your clear!
vide was harsh to be honest, it knocked me around a fair bit. I had really bad ulcers which stopped me from eating and drinking at 1 point.
im glad that VAI is ment to be easier.
I got 6 sessions of it after radiotherapy which finishes on monday
You will be fine. Plenty rest.
Where was your sarcoma
Pelvis and spine. It spread to my lungs but they are clear now.
hey, I also have ewings sarcoma, in the sacrum, pelvis and lungs. About to finish chemo and start radiotherapy on the lungs. I just finished proton therapy on my pelvis and sacrum too. Just wanted to ask how u were since finishing treatment?
Still 4 more sessions on chemotherapy to go yet. Feeling a little stronger each time though