Hello im Russ and im a alcoholic..............

If only :)

I was diagnosed 2 years ago with T cell Non hodkins  lymphoma and ive been on the conveyer belt of a wide range of chemo,stem cell stuff,Stays in hospital,constant pain,illness but worst of all lonelyness due alot to the steriods causing mood swings so having to retreat to prevent the lashing out on the few people that do bother to contact.

It now seems they have run out of options and looking a trials,but i didnt come for sympathy,my question is...

Anything good on the telly? ;)

 

 

 

 

  • Hi, you haven't lost your sense of humour... Welcome to the forum

  • Hello,

    Welcome to the forum you certainly bought a smile to my face! My hubby has terminal cancer and we are waiting for the latest scan results so thanks for the distraction. 

    I'm watching supervet - great if you love dogs.

  • Good luck With the scan Sarajo.

    Not sure Supervet is my thing.Breaking bad was though,one of the best bits of TV ever produced.

     

    You know what is funny,i still get told off for smoking :)

     

    One thing ive learned in the last 2 years,theres always worse off than you are..................

  • Believe me I can relate. The pain and the stinking rotten steroids. I was diagnosed last April with stage 3 Lymphoma B cell. Made it through the Chemo but I'm on the Rituxan & steroids every 2 months for the next couple years if I make it. I am terrible to be around after the treaments because of the steroids. The lack of sleep and nightmares are terrible to. Try Californication with David Ducovany and Natascha McElhone. I loved that show. They made 7 seasons with 12 episodes a season. It was a great show. I don't no how appropriate it is if you have an alcohol problem but you might give it a try. I wasted a few weeks binge watching it. Good luck......................

  • New to the group.....diagonosed 12 years ago. Got the Ritux for 14 months. All good. Seven years later, I'm back with a vengence. I don't worry about it to be honest. You are going to die one day anyway. This stuff of worrying about it, trying new things, now drinking protein shakes (you know what I mean) is all crap in my opinion. It is what it is. Make your choices, and go from there. Live life now. You all have certainly lose friends early in life for other reasons. Go with it. But, there is an end to what I personally will do to "save myself" and that does not include bone marrow transplants, and radical treatment. Why be miserable while you're miserable? That's my thing. Might not be yours.
  • I totally agree. I do everything I can as far as trying to take care of myself like eating and vitamins and stuff like that but it is what it is and personally I don't think it helps but it's worth a try and way easier then chemo treatments. One thing I don't do is smoke and drink. I have a wife and 2 boys so I have to fight for them but there is a line in the sand that I will not cross with the treatments as well. I refuse the bone marrow and radical treatment. I believe like so many of you on here it's going to be about quality and not quanity. I am certainly not afraid of the end and on the real bad days welcome it probably a little more then I should just yet. I have got to the point where I have learned not to spend my good days worrying about the things I can't do anything about but its the bad ones for me, the painful ones that I still have the most trouble with. I no my family is expecting me to go farther with the treatments when the time comes but I have already set down and explained that line in the sand. My wife is having trouble with it but I refuse to cross it. I have watched others (family, freinds, freinds of freinds) fight cancer and I did not like what I saw. Of coarse all of them are gone now except for my wifes father who was diagnosed the same week I was except he's fighting stage 4 prostate which is all through him now and I'm fighting Lymphoma stage 3. If living an extra 6 months means having my diaper changed forget it. I will not die like that. That's god awful on top of miserable which I refuse to do. I'm already living miserable the best I can. Cancer is the worse thing I have ever confronted. I refuse to let it cripple me to the point that I won't be able to jump when it's time. My plan is to jump when it's time and I don't plan on having a parachute. 

  • What is it you have? I have non hod. Lymphoma B. What were your treatments to be able to make it twelve years? When did you start your treatments? How long have you been in remission? Could you share this if you get a chance. How old were you when diagnosed. I'm 48 and It's driving me crazy. I go in on Friday for 4th PET scan to make sure I'm still in remission. Thanks.............Adam

  • Thanks to everyone that has posted,its apreciated.

    The drink thing was humour,i actually couldnt tell you the last time i had a drink.Im bad enough without it :)

     

    I went through the sleepless nights but theres pills for that and ive never looked back.

    Most of the treatments have had steroids attached and that was one of the worse eliments,For me i was just a passenger in it,you knew it was coming,and depressing when it did.Fortunatly in that respect ive had a bit of a break and levelled off and back to my old self.Probably just aswell as id likely already be on the ban list here :)