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Terminal bile duct cancer

Hi,

looking for anyone who has experience or knowledge about this cancer, my husband who is 45 has just found out recently after becoming jaundice that he had bile duct cancer and advanced and spread to liver, we met oncologist last week and said it was probably stage 3 but he said it can't be removed because of where cancer is! So surgery isn't an option, he then said that it os terminal and prognosis with chemo might give  him 6-12 months!!! I can't get my head round it all!! He is fit and healthy, was never ill apart from jaundice!! Any help would be great i.e. Palliative chemo 

 

thanks amy 

  • My wife has bile duct cancer it was picked up early in 2017 after a private medical gave a c.a.19 reading of 54 A trip to the docs he said will do ultrasound then a c.t. scan then get refered to specialist This is Stoke on Trent he said we don't do any liver work in Stoke you will have to go to Birmingham 2 cancelled operations later, a resection was done in December 6 months after orginal diagnosis.Things seemed o.k. untill April 2019 then the ontologist said there is not much we can do apart from chemo the cancer is back. Every question I asked there was a negative answer from the oncologist at Stoke, wat about another resection no we don't do that.So we took the chemo cisplatin gemcibine oxalpltin folfox taxol we find out some weeks the chemo was stopped because white cells to low or red cells Later we find there are white cell boosting injection and Tran fusion for red cells the ontologist never mentioned this it was the nurses who gave this.my wife is now ill chemo has been stopped the ontologist said I don't think it's working It seems to me that these oncologist people give up on you this ontologist attitude seems to be go away and die The latest c.t. scan said the cancer only in liver not spread to lymph nodes My wife has now passed away, this was on 5 Nov 20 In her final 8 weeks her legs swelled as did her stomach walking was impossible but she was not jaundiced Her breathing became fast she had ,10 days in hospital and got sepsis She came home and passed a week later Things were not helped by her sister whom managed to have her moved to her son's house were she was put on morphine and died in the confusion her son managed to get her to a soliciter office were she signed her house over to him, not my house. Now he is executor of the new will, I was just the husband so make sure there can be no last minute will changes and the executor is the husband or wife

  • Last year my sister was diagnosed with stage 4 bile duct cancer out of the blue. She was given weeks to live. They started chemo right away, which she responded well too.  The tumor blocking her bile duct shrank considerably and has given her an extra year of life.  Unfortunately she is now at the stage where chemo has been withdrawn and is rapidly deteriorating but she is comfortable and not in any pain.