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Terminal bile duct cancer

Hi,

looking for anyone who has experience or knowledge about this cancer, my husband who is 45 has just found out recently after becoming jaundice that he had bile duct cancer and advanced and spread to liver, we met oncologist last week and said it was probably stage 3 but he said it can't be removed because of where cancer is! So surgery isn't an option, he then said that it os terminal and prognosis with chemo might give  him 6-12 months!!! I can't get my head round it all!! He is fit and healthy, was never ill apart from jaundice!! Any help would be great i.e. Palliative chemo 

 

thanks amy 

  • Hi was just wondering how your partner is doing, my mum got diagnosed last November, just wondered if there was any update on your partner's condition 

  • Hi Gemini23, 

    My dad was diognosed when I was 18 and sister 15. I know this is a big difference for your younger children. I found a lot of support from school, my mum told our school and they played a big part in supporting us and I think maybe took some pressure of my parents. I do feel personally its best to be as honest as you can be, children are often more resiliant than you think, but super important to make sure they are not doing any research on google!

     

  • Hi bob. 
     

    I have been reading this thread very careful and I noticed you are I think (I may be wrong it's hard to tell!) you are the only male? I have seen post about their bile duct cancer. Please correct me if I'm wrong, just going on peoples log in names . 
    y dad was diagnosed just over 6 years ago with kidney cancer. It has since spread to his hip, lung, stomach and we found only only on Sunday that it is also in his bile duct too. He is very jaundice and due to have a stent fitted tomorrow. He is so weak and is barely eating. I fear with everything he's got the prognosis won't be brilliant. 
     

    my dad will never speak with me and my sister about how he feels, only my mum (but not sure how honestly). I just wondered if you felt or could think of anything me and my sister could do to support him. We live with our parents still, my sister is a carer so she seems to be coping very well but I am so scared of him coming home so poorly. 
     

    Sorry this is all a bit of a ramble, there is just so much going on in my head! 
     

    thanks 

    Liz x

  • Hello all, my brother died in 2011 of biliary duct cancer aged 37, he died within two and a half weeks of diagnosis as he decided on chemotherapy to extend his life my 6 months unfortunately the chemotherapy’s weakened him more and passed away a few days after. A year after he died I was diagnosed with a benign tumour on my gallbladder which I had surgery but was wanting to know if there is a genetic thing?

  • Hi, so sorry to hear about your brother. What symptoms did he have? I'm so afraid of my dads prognosis .

  • Hi Bob c.

    im so sorry to hear of your diagnosis. My dad was diagnosed 4 weeks ago and we are devastated. He's going down hill by the, starts chemo in 5 days. He's in so much pain. 

  • I'm so sorry to hear. Did he go down hill quickly? X

  • Hi Toofiddie,

    Sorry to hear about your dad? His prognosis is the exact same as my dad  . Perfectly healthy and then this cane all of a sudden. He's gone down hill so much he in the last few weeks . 

  • So sorry to hear about all your loved ones, I lost my darling dad to this horrible disease two weeks ago, he was perfectly fine a few months back, playing golf every other day and on a 2 month golfing holiday at the beginning of the year with my mum, he came back from holiday and started to have indegistion at night and feel lethargic, lost his appetite but typical man wouldn't go to the doctor until he eventually got jaundice, from there on it all happened so quickly, consultant called to ask him to come into hospital for some blood tests and he never came home! He had a stent fitted and it was the beginning of the end for him, he developed sepsis and then internal bleeding, he then had a seizure and left with brain damage apparently this is a rare complication from this awful cruel disease, the most horrendous thing about all of this is that dad had to go through it all alone due to covid we weren't allowed to see him so it robbed us of any time with dad! We only got to see him when he had had the seizure but by that point he wasn't really with us any more.  I'm so angry and bitter about this and none of us will ever get over it, my mum is heartbroken, they had big plans this year as they were both turning 70 and it was their 50 year wedding anniversary in October! They have been together since they were 11 years old so my mum has never been without him. Our hearts are broken! He had 7 grandchildren all of whom adored him as he was so silly and fun loving. 
    I wish you all strength and love and hope your loved ones pull through! Happy to talk to anyone struggling as I'm struggling muself xx

  • I'm so sorry to hear. This seems to be a very aggressive cancer that's always found out too late. Did your dad have any chemo at all? My dad started chemo  after being diagnosed few weeks. He's gone downhill so so fast. Not eating, sleeping all the time. After loosing so much weight.