I was diagnosed with Waldenström's macroglobulinaemia around 15 years ago. Managed by a watch and wait policy until 2 years ago. Eventually had to start 6 months of chemo a year ago. Lots of problems and hospital admissions during chemo including 2 bouts of sepsis. Last chemo September last year. Unsuitable for Rituximab maintenance therapy as White cells very low. Nasty bout of PCP pneumonia necessitated hospital admission during early Feb. Still taking antibiotics until seen in clinic in April. Will I ever get any energy back? Am so fed up with causing worry to those I love.
