Hi I'm Helen

Hi I'm Helen, I suffered a devastating head injury which resulted in stroke & hemiplegia - a severe disability in 1994, I kept trying to explain to the Dr's & nurses that something was wrong as I kept bleeding constantly, not just monthly, but they said I was far too ill to have this investigated so it had to wait till I was out of hospital & finally back to work, I was then diagnosed with cervical cancer stage 3.  I went through external & internal radiotherapy & was given the all clear 10 years later.  I was told I would be very unlucky for it to return at this late stage but it did! I was told that my only course of action for a cure was major surgery the removal of my bowel & or bladder, I declined & changed my diet, took loads of supplements meditated & agreed with the oncologists that I would have the tumor removed if it could be done without affecting anything else, I had an investigation under anasthetic & was told it had spread so this would not be possible so I decided to go down the chemo route with help & advice from a brilliant nutritionist, my oncologist was dead against me following her advice but I was feeling so much better so I went with my gut feeling & followed her advice, the oncologist gave me a 2% chance of the chemo working he advised that I would require 6 rounds of taxol carbo platin, according to Macmillan one of the hardest regimes there is, anyway they gave me an MRI scan after 3 rounds & decided I should have the 4th round as it was already booked in & it would take time to get the MRI results.  I rang my specialist nurse & she was delighted to report an amazingly good result, the radiologist reported that the cancer had shrunk to nothing & in his view the dark shadow which remained was probably scarring from the radiotherapy.  I later saw my oncologist who said he didn't know how this had happened! He put the shadow down to remaining cancer said they had never promised a cure, he said I could choose how I wanted to move on, regular checks or ? He decided there was not much point in continuing chemo, better to save any treatments in case the may be needed in the future. I decided that I would forego checks but would keep my specialist nurse as a point of contact if I ever need to be re referred, I also arranged funding & iscador treatment via the UCLH which was the treatment my Mother went through after suffering ovarian cancer, it boosts the immune system.  I still suffer side effects from the chemo, I don't think the tiredness ever completely goes away & living with the oncologists advice that in their view it wil come back I find hard, Macmillan were extremely helpful to start with but clearly have more needy patients than they can deal with so they discharged me.  I do feel at a bit of a loss & very alone, I try to stay well with healthy diet exercise, monthly accupuncture sessions & anything else I can find to throw at it.  I am very determinned to prove that I can keep it at bay but their gloomy prognosis does often come back to haunt me. 

  • Hi Helen. Well done eh! You've been through so much. My friend was diagnosed with cervical cancer last year and although there has been no recurrence she has terrible trouble with her bowels. She's hardly left the house for four weeks, which is such a shame. I have secondary liver and kidney cancer and have been given six to nine months, oncologists can be a gloomy bunch. Xx

  • Hi Harebrain, I have found that you have to help yourself, iscador treatment is great it can help with any solid tumors & is available via the NHS, its mistletoe treatment available through the UCLH through their Integrated medicine department, my Mother had this treatment when she was given less than a year to live over 20 years ago, you need to be referred via your GP who would need to get funding from your area, diet etc also has a massive impact, not easy to sustain but very worthwhile, my nutritionist advised me to soak 2 teaspoons of flax seeds in a shot glass pf water & drink once or twice a day this has helped me through my really bad bowel problems, perhaps this is something that may help your friend, I do always keep a pack of Imodium with me although since the seeds don't need to take them very often. I hope you can manage to fight your cancer, oncologists being gloomy is really not helpful for anyone, whilst we want the truth, how do they know these things? They told me well over 20 years ago that I may only have 6 months left! Take care XxXx