Shocked

Hi my name is Racheal. On 6th June 2017 I was diagnosed with a rare cancer,only 1,200 cases a year and even rarer for my age,im 43. Its curable so I've been told and fingers crossed not spread. Just praying now lymph glands all clear. Not sure what too say on here just know I feel so numb and things moving so quickly I'm struggling too take it in 

  • Hello Rachael My mum been diagnosed with cancer for the 2nd time was such a shock ..., and I've watched her have every emotion going.... fear .,,anger ...shock ... girl..,, all I can say is .... keep positive .... must be so difficult ... mum agreed it's the only way to be me she is so much better in herself ....hope this helps you I really do....,xxxxxx
  • Hi Anne61 

    Thank you yeah I've had a couple of bad days since the post as things starting too sink in although still feels so unreal. Today I got my date for surgery 4th April,trying not too think about it too much but been told its a major operation. I hope your mum will be ok and I promise I'm trying so hard too be strong,think it was just the words it's cancer. I went from being told 18mths ago it was an infection in my gland too now this..Its like I'm in a nightmare and can't wake up if that makes sense xxx

  • hi, i also have rare cancer immature terratoma i am also very lucky as it is treatable, however still doesnt stop you having that rollercoaster of emotion though...does it ! I think the main thing is just stay positive as i believe state of mind plays alot with recovery and yes i believe laughter is the best medicine, You have up days and down just remember you are human you have the right to be sad sometimes but also make sure you make the most of the good days sticking two fingers up to the awful disease.Wishing you all the best xxx

  • Hi carla

    I agree there its a rollercoaster of emotions..I'm not sure its sunk in as things moving so quickly with appointments and still working..sounds strange I laugh and joke about it during the day but finding at night I'm in bits but then don't know why...so many more people out there worse than me which makes me feel selfish..I will beat this though. I hope you heal soon and send loads of love too you xxx

  • You sound to me as if you are dealing with this far better than I have or continue to do.  Research is ongoing and managing cancer improving on almost a daily basis.  Stay strong and I wish you all the very best.

  • Thanks Chichester2 xx

    Not sure I'm dealing with it,I'm trying my best although I'm only at the diagnosed stage,my treatment and operation start 4th April as at the moment they've found my kidneys are not functioning properly although nothing too do with the cancer..I just feel so numb its weird its like this is not me its happening too someone else. Loads of love sent too you xxxx

  • Hi Racheal, Dont ever feel selfish you are an individual it effects us all in different ways,I had a moment today where you get that awful sinking feeling of its just too much to take but strangely an hour later totally fine again, like i said its a roller coaster but just hold tight and we will get through it :) sending hugs xxx

  • Just to let you know my experience and how i have dealt with it.... the first year you only realise in the second year that it actually happened! so many appointments treatments etc .....so just sit back sweetie put your life in the proffesionals hand and let them get you better xxx After the 1st year this is when i found the mental effects occured i tried CBT  For PTSD  Nightmares flashbacks etc but found it didnt work for me but totally worth a try as i know people it worked for! Hope this has been helpfull xxxxx

     

  • We all seem to go through identical emotions ranging from wild hope to utter despair, but we are all in the hands of professionals who have devoted their adult lives to helping us.  What wonderful people they are!  I hope and pray for all us sufferers, and I do find praying an enormous help. Love to you all. Xx