Prostate cancer

hi my husband has been diagnosed recently, I feel we are on a roller coaster he has been offered all treatments and we are struggling to make a decision. We have seen radiologist and have an appointment with surgeon on Monday. 

My hubby is 61 has a psa of 6.8 and gleeson score of 7 which we have been told is low risk, if this is low risk why have they offered all treatments..... Very confused !

 

 

  • Hi Debz,

    When I was diagnosed I had a psa of 70 and a gleeson of 3+3=6. I was told it regraded as a low grade cancer. I was put on hormone therapy for two years and after a while i had radiotherapy this reduced my psa right down to 0.01, the lowest they can neasure, so it was a very good result.

    I suspect allthough they regard it as low risk, they want to stop the cancer getting any worse which if untreated there is a risk it may happen.

    At the stage your at before treatment starts it is not only confusing but also scary.. Threatments for proste have came a long way even since my treatment.

    I wish you and your husband all the best and pleasekeep in contact when you can, Brian

  • Hi Debz,

    i had psa of 5.8 and gleeson of 4+3=7. They sent me for a biopsy which showed 40% cancer in the right lobe. Straight after an MRI and bone scan revealed no spread to the spine but scan revealed spread to nearby nodes. They put me under high risk and started hormone therapy as it is needed 3 months prior to 37 radiotherapy over 7 1/2 weeks. After giving me 50% chance of cure my latest test is 0.11 psa. I will receive 3 LHRH agonist injections long term which is no hassle at all as local surgery specialist does it in 5 minutes. So it seems the LHRH hormone therapy will hopefully manage it long term.

    I still go to work every day and did same throughout the entire process. keeps my mind proactive and between the cancer the whole family treat it like its normal and we laugh about it while we still play golf (they tease me constantly). we all go on holiday and have loads of fun. 

    i still plan my life as if i am going to be around for ages even though 62 now.

    The beginning uncertainty is the worst. And refrain from googling info, as it will only scare you. 

    i beleive not even the experts know everything. the best is tackle it like a fire. get the radiotherapy done. interact with the cancer unit you use. mine in leicester royal were fantastic.

    when my wife questions why i am so confy with it i tell her i could be hit by a truck anytime so am going to ignore the side effects and live my life, no matter what.

    when thigs get serious you may as well laugh or you will be in tears for ever.

    my thoughts are with you however, as the diagnosis is the worst period to get over.

    life became normal after i chat flippantly to all about the cancer when they enquire as others feel awkward in conversation. i tell them i got cancer, so what, then we can relax and chat like we always used to.

    i do agree with you that 6.8 psa does not sound like low risk unless all scans and tests show it is contained locally. try tackling it head-on with all the tests and go for the treatment available. i wish i discovered mine earlier. the sooner you sort it the least chance of spread.

    while i am breathing i shall not let this change my life. simply refuse.

  • Hi 

    my hubby was diagnosed with almost the same stats 3 years ago. He was offered radiation or davinci robotic surgery to remove the prostate . We were also told that once radiated it is very difficult to take out  should there be a recurrence   We chose surgery and has been the best decision   The cancer was contained in the prostate and is now cancer free . Surgery went well with no problems and after effects to speak of. He was 70 at the time.  Good luck 

  • Hi Debz

    Jane has a good point to explore. I was informed mine had spread to the nodes so surgery was no option. Before you make decisions chase up the MRI and and scans to ascertain exactly where you stand insofar treatment. Obviously it also depends on whether you are consulting with your GP or at a specialist cancer unit at a hospital with all the facilities. As the consultants told me, there are many different treatments for a whole range of stages depending on loads of factors. Like i said, the worst part of the journey was the unknown after the diagnosis. Find out everything in the beginning. Yes, it was damn hard for us also, especially to think straight at the same time as emotionally ripped apart by the diagnosis at first. It seems like somebody is simply ripping your existance apart with a roll of the dice. It is vital though, that you stay focussed on all the details to make the correct decision, as we are finally asked to sign consent forms before treatment, unfortunately placing the ball in our court. If your  prognosis allows, Jane's solution sounds good. You would obviously have hubby's agreement as surgery may or may not be ideal depending on your unique circumstances. Surgery is an invasive procedure with its own risks. I pray you make the most successful decision. Like all the fellows treated with me for 37 days, we all wish each other only the best. It may help to speak to as many specialist nurses in the cancer unit as possible. Mine were unbelieveably well informed as they all had a wealth of experience and easy to communicate with. The consultants sit in their officers with all their education. The nurses spend years dealing and interacting directly with us discussing our individual cases, side effects, outcomes etc, etc so are walking info libraries. Also remember, many of us, under certain circumstances, can be managed with all the new advances, with stuff like hormone therapy, etc for more years than the average motorist. Please try to stay strong and very, very good luck.

  • Thank you for your reply, we have not been offered Mei or any other tests, we saw radiologist and we are seeing the surgeon tomorrow 

  • Thank you for your reply I am glad surgery went well for you, we are seeing a surgeon tomorrow so hopefully it will help us decide 

  • Thank you for your reply and advice

  • We have seen the surgeon this morning, he was really nice

    we have decided to go with open surgery and have prostate and lymph nodes removed

    feeling a bit more positive now we have made a decision just need it to be over now

    thank you all for your replies 

  • Hi Debz,

    Good luck to you both. Hope all ends positive.

    You are never alone in here.

    NikZ