Introduce myself

Hi there

First time on anything like this so forgive me if I don't make much sense.

I  was wondering if anyone else has had the same diagnosis and treatment as me. I have a rare Primary CNS Lymphoma. At first doctors thought I had Toxoplasmosis but eventually after a brain biopsy I got the correct diagnosis. It was decided that a Stem Cell Transplant would be my best option of treatment. I have undergone Matrix Chemotherapy then another very strong Chemotherapy, BCNU and Thiotepa, then my Stem Cell transplant, this was 3 months ago. I had my first scan since my transplant 2 weeks ago and go for my results next week. I'm worried sick about the result but know that worrying won't change anything.

Anyone out there had the same?

  • A warm welcome to Cancer Chat, Plop.

    I’m so sorry to hear you were diagnosed with a rare Primary CNS Lymphoma but I'm glad you reached out to our forum!

    It is completely understandable why you are worried, waiting for the results is sometimes terrifying, isn’t it? So I hope you will get a chance to chat with some of our lovely members soon as talking about our worries often helps.

    Once you find out more about your scan results do come back and let us know how you are getting on, we’ll be thinking of you.

    Best wishes,

    Renata, Cancer Chat Moderator