Hello everybody !
I’m 42 years old, you can call me Ale, I'm from Brasil. My diagnostic is Acute myeloid leukemia (AML – M1 with mutation of FLT3).
How is terrible this name, and every oference cause in we life.
At first I thought “Why me? Why? I always had a heathly life and Why ? I don’t know.
After that I saw I saw the suffering of my mother; much more than my suffering with needles or allergies, transfusions, fevers and vomits, the loss of my long hair.
So I began to think positively, to smile even in this situation, not to let this "thing" knock me over.
Of course sometimes I'm down, but it's a phase that will pass like everything in our life trajectory.
Now I’m in remission after 3 ciclos of chemo. It’s good but I must need a transplantation bone marrow.
Unfortunately I have not a donor in my family, so I waited almost 6 months Bank of donors.
It's strange because I was registered more than 10 years as a donor and now I'm on the other side. Anyway …
This week I received a great news, they found someone 90% compatible.
There are risks of rejection and other complications, but if I wait another donor (100%) while I waiting the cancer can come back a high risk.
I have many dobts about transplantation. In my case the gene mutation FLT3 haven’t cure, not yet in my country. So I decided to look for organizations, clinics in other countries, when I met you.
I was hopeful when I read about FLT3 searches, but I can't participate in the tests because I'm not European.
But even so I hope they have a great evolution in research and find a way to eliminate cancer.
I wish that all those who fight against cancer, can say one day "I am healed" and celebrate a new life.
Good Luck !!!