Waiting for a transplant - AML

Hello everybody !

I’m 42 years old, you can call me Ale, I'm from Brasil. My diagnostic is Acute myeloid leukemia (AML – M1 with mutation of  FLT3).

How is terrible this name, and every oference cause in we life.

At first I thought “Why me? Why? I always had a heathly life and Why ? I don’t know.

After that I saw I saw the suffering of my mother; much more than my suffering with needles or allergies, transfusions, fevers and vomits, the loss of my long hair.

So I began to think positively, to smile even in this situation, not to let this "thing" knock me over.

Of course sometimes I'm down, but it's a phase that will pass like everything in our life trajectory.

Now I’m in remission after 3 ciclos of chemo. It’s good but I must need a transplantation bone marrow.

Unfortunately I have not a donor in my family, so I waited almost 6 months  Bank of donors.

It's strange because I was registered more than 10 years as a donor and now I'm on the other side. Anyway …

 

This week I received a great news, they found someone 90% compatible.

There are risks of rejection and other complications, but if I wait another donor (100%) while I waiting the cancer can come back a high risk.

I have many  dobts about transplantation. In my case the gene mutation FLT3 haven’t cure, not yet in my country. So I decided to look for organizations, clinics in other countries, when I met you.

I was hopeful when I read about FLT3 searches, but I can't participate in the tests because I'm not European.

But even so I hope they have a great evolution in research and find a way to eliminate cancer.

I wish that all those who fight against cancer, can say one day "I am healed" and celebrate a new life.

 

Good Luck !!!

  • Hello Ale from beautiful sunny Brazil, seja bemvinda!

    Thank you for sharing your story with us. It is great news that you are in remission at the moment and that they have found a donor for you and I wanted to wish you the best of luck for the transplant.

    You might be interested to read the information on our website on AML . It includes information on the latest UK research.

    We love your spirit and share your desire to see all cancers cured. I hope you will meet others here on this forum who have also been diagnosed with AML so that you can share experiences and be there for one another.

    Best wishes,

    Lucie, Cancer Chat Moderator