Hello Linphy,

You have joined the right forum to connect with others with ET as we have had quite a few members with the same condition who posted recently. I noticed you had already commented on [@AndrewF]‍ 's thread here and there is also a nice lady [@ChrisAnnSen]‍ who joined recently and who was about to start the hydroxycarbamide. You can read her story here and respond to her if you wish.

Perhaps you could mention the tiredness you are feeling to your medical team? Do mention too that you are struggling to sleep at the moment and that it has got worse since starting your treatment. They will be able to advise you on the best course of action for that.

Our nurse helpline is also open Monday to Friday from 9am to 5pm so don't hesitate to ring them on this free number 0808 800 4040 and ask them any question you may have.

I hope you feel a bit better soon - it is so hard to cope with sleep deprivation!

Best wishes,

Lucie, Cancer Chat Moderator