My mum just been diagnosed with uterine cancer

Hi everyone

I've just joined today as I feel my world is crumbling.  My mum has just been diagnosed this week with uterine cancer and is booked in for a hysterectomy on Thursday next week.  She had a massive bleed with clotting shortly after a routine normal smear.  She was blue lighted to local a&e who were useless to say the least sending her home in the early hours still bleeding with form of follow up.  She went to Gp and had an appointment with a consultant the following week with the plan for a hysterectomy after MRI.  Due to Xmas hols she was given the scan results on Wednesday afternoon confirming things are worse than first thought.  By Thursday she had been booked in for next week and was away seeing surgeon yesterday.  Everything seems to be happening at break neck speed which I am grateful for but I'm scared for my mum.  

Sorry for the massive post but just getting that out there is a help.

ty

jody 

  • Welcome to the forum Jojo79.

    I'm sorry to hear your mum has just been diagnosed with uterine cancer and can understand why you are feeling scared but it's great a treatment plan is being put in to action so quickly. Some members find knowing more about a diagnosis can help and I have found some information about it on our website here if you want to have a look and find out more.

    I have also had a look around our forum and found two members, [@Han]‍ and [@Grace95]‍, who have also been diagnosed with uterine cancer that you may want to talk to about what your mum is going through. Now that I've tagged them in this post I'm sure they will reply when they get the chance to offer you their support and share their experiences with you.

    I hope your mum's hysterectomy goes well on Thursday Jojo. Do come back and let us know how it goes, we'll be thinking of you both.

    Best wishes, 

    Steph, Cancer Chat Moderator

  • Hi Jody,

    Sorry to hear about youre mum, but its great she is having her op. so quickly. 

    I was diagnosed with uterine cancer last June and had a total hysterectomy, lymph gland removal etc.at the end of June.  At the time it all happened so quickly, ultasound, CT and MRI scans and biopsy. I was told it was an agreesive form (serous cell) but had been caught early. I barely had time to think and take it all in, just as you and your mum are experiencing now.  My op. went well and the surgeon was happy that they had removed it all and there was no sign of it having spread.  8 weeks after the op I started chemotherapy, this followed by a short course of radiotherapy, finishing just before christmas. Not a great bundle of laughs I'll admit, but a great feeling when you are coming to the end of your treatment. I have a follow appointment, but am feeling very optimstic and starting to plan ahead for 2017

    Of course I do not know what stage your mums cancer is or how her op. will go, but I wish her well. This sounds obvious, but plenty of people will tell you to be positive.  What I found most helpful was talking to family, friends and almost anyone who would listen.  Find out as much as you can and ask questions of the consultant, nurses, your cancer support worker, its much better to know than worry.  Tell your mum to accept offers of help, especially after her op. when she cannot do things for herself, be it shopping, cooking whatever. 

    You often see it referred to as 'your cancer journey' which I was sceptical about at first but I think I can see what is meant by the phrase now.

    Sorry I have rambled on a bit (never posted before)

    Best wishes, hope all goes well,

    Look after yourself Jody, as well as your mum.

    Angela

     

     

     

     

     

     

  • Hi Jody. My lovely mum has also been diagnosed with Uterine Cancer stage 4 :(, like your mum she had a hysterectomy (at the time we didnt know the severity of it) as initially they said it was cancer in the womb lining but after her op they discovered that the cancer cells were microscopic to unable to detect with the naked eye and after further tests they realised it was Uterine Cancer. We were told it was incurable a dsy before new years eve 2016 (so still so hard to digest) But, at the moment mum is doing really well. She has had four bouts of chemo out of six and we are currently waiting for her scan resukts to come back.( hoping & praying all will be OK) What I find hard apart from the obvious is the not knowing ! Not knowing how long we have and not knowing much about this evil cancer. We are staying as strong as we can as a family & so very proud at how well my mum is & how strong and positive she is. Of course she has hard days but she is so amazing. I feel scared, and very sad and wish I could take this all away. But I have to be strong for her and thats that. I hope your mum will be OK. Sending lits of strength your way. Nici
  • Hi Jody,

    I am going through a mirage of tests at the moment as I have had a period now for 4 weeks. Mostly light bleeding with a couple of days of heavier bleeding. I am very worried that I might have cancer of some form. I have googled my symptoms and it could be anything from perimeopause to fibroids or polyps to cancer, I am so scared to the point that I don't want to have the tests. I am 51 and up until now my periods have been quite regular although before this 4 weeks of bleeding I did miss a whole month. Heres hoping it is only my hormones. Did you have continual bleeding like mine?

  • Hi Jody

     

    I am confused by the dates showing on this post but as I have been tagged feel dates may be incorrect but not sure. I had stage 3 uterine cancer as well as 5cm tumour on Ovary. I think it is good everything is happening radipdly - my treatment was not so rapid and that makes it drag out. I had total hysterectomy, Chemotherapy, Radiotherapy and Bracytherapy started Jan 2016 and Finished July 2016. Ok so I have had fairly comprehensive issues from the treatment but would not have stopped it obviously. I really hope you and your Mum and doing ok and please ask any questions. Once it is all happening it is a conveyor belt and probably worse for you than your Mum - to be Han xxx

  • Hi my mam has been diagonosed with uterine carsonsarcoma 1b high grade i dont understand plz some one help they said clear cell and done a cat scan and said something on spine and liver so they done mri and still waiting for results she has to have radiotherapy  x