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Scared

Kimmyd
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12mths ago was diagnosed with polycythemia vera.....now hemo has changed His diagnosis to Primary Mylofibrosis ....I presented elevated red blood and high platelet's.. I'm jak2 positive and am anaemic.... I have a small bleed in my small intestine... I haven't had a biopsy yet....spleen slightly enlarged 13cm....I'm scared 

 

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    I am sorry to hear of your diagnosis. I have a quote that I hope you will take comfort in. It helps me. "Do not look forward to what might happen tomorrow. The same everlasting Father who cares for you today, will take care of you tomorrow and every day. Either he will shield you from suffering, or he will give you unfailing strength to bear it. Be at peace then and put aside all anxious thoughts and imaginations." St. Francis deSales

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    Hi Kimmyd & welcome

    I'm sorry u are going thru this. It's normal to be scared I am too as I am waiting to see what is happening to the mass in my kidney. I have non hodgkins lymphoma which is in breast sternum & spleen. My spleen is also enlarged. It is scarey wondering what will happen next but on this forum u can voice yout fears & not feel so alone. 

    I try to take each day as it comes & find joy in whatever makes me smile be it God, my loved ones music nature etc. have a look at beautiful pictures in the inspiration thread. 

    Take care

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