Im new and looking for support

Hi all  

Im new to this  

Im 37 and in march i was diagnosed with breast cancer which has spread to both lungs and collar bone.  ive had chemo, a full mastectomy and 15 sessions of radio.  My cancer is classed as terminal as it can be treated and not cured.  But now my treatment has ended i feel like whats next.  Do i wait for it to start spreading.  I feel like im in limbo. Does anyone else feel the same.

  • Hi missowlz & welcome to this supportive site. I'm really sorry you are going through this Bless your heart. Maybe click on living with cancer & there will be others to support u. I'm sorry Im not very good at advice x

  • I had breast cancer found through a mamagram had a lumpectomy and all my lymph nodes removed as it had spread in two of them I was told it was treatable but not curable I had 15 sessions of radiotherapy but refused fec chemo my op was in sept 2010 i was discharged in feb this year ive been on three different tablets as i struggled with side effects but persevere with letrozole which i have been on for the last three years i have got to stay on them for at least another five years i live on my own but still manage to do my gardens and carry on. please try not too worry I just told myself it's like going the dentist it's over now and try to get back to normal. all the very best xx

  • Thank you i will try the other site. X
  • Thank you. Its nice to hear of good stories. Hoping to be here for a long time. Thanks for your help. 

  • Hi

    I was also 37 when diagnosed just before Christmas last year I turned 38 yesterday.

    I also had a mastectomy chemo and rads.I'm now taking tamoxifen for at least 10 years.

    I am clear at this time (I presume) not really been told one way or another.Like you I'm out the other end wondering what next.I can completely relate in that regard.I'm sorry to hear yours has spread.

    I just wanted to offer my support and to let you know I'm here to chat if that will help.You can private message me if you would prefer?

    take care

    Ness x 

  • Thank Ness

    Dont know how to private message on her. Im not very good with these things. 

    I wish i knew where i stood now. Im on injections every month. One is to strengthen my bone. The other is to force the menopause because its a hormone growing cancer. That is just another kick in the teeth as we were going to try for another baby this year. I dont know what to do anymore. I just dont feel like me. 

    Sorry made this all about me. How are you doing. Does the tamoxifen make you feel ill xx

  • Goodness don't apologise,I said you could talk to me and you can. My cancer was also hormone led,I now can't have more children.I had toyed with the idea of another because only my youngest is my husbands and I really wanted him to have 2 of his own.I know now it's too dangerous and it's just not a risk I'm willing to take. I take tamoxifen I was offered the monthly injections but I declined.I hope they are not too brutal? Do you know if you are having any other treatments? You must feel so angry,I'm so sorry for you.Wish I could say more to help.x
  • The tamoxifen isn't too bad.I get achy joints back pain and hot flushes.They do seem to be tailing off the longer I take it though.

    I was on the add aspirin trial but they have taken me off of it.They say it was too dangerous for me as I was displaying worrying symptoms.Tummy pain,acid reflux,sickness and ringing in the ears.I have noticed bleeding gums too which is another thing they worry about.So I guess it was just not right for me.just hope I don't have an ulcer now! 

    I don't have to be seen for 12 months now.I find that pretty daunting. 

    I'm ok, hate feeling old before my time.Do feel a little abandoned....I wish I could have more tests and scans to put my mind at rest.

    Do you work? have a hobby? Is there things you enjoy doing just for you? perhaps some time just for yourself may help a little. It's something I wish I had more of.I don't think my family ever thought I might need time away from it all..just to forget. xx

  • i feel exactly the same just finished chemo was told last nov year to go. so its going to come back and there will b nothing they can do. why is it its the first time it happens to us but they treat it like its normal .
  • Hi Missowlz,

    I saw you mentioned that you're not sure how to use private messaging so I just thought I'd pop by and share this link with you that shows you how to do it. 

    I hope this helps :)

    Kind Regards, 

    Steph, Cancer Chat Moderator