How do I help my mum diagnosed with MDS

Hello  my mum was diagnosed with MDS in March and given 6months to a year to live. She had rectal cancer a fewyears ago which was successfully treated with surgery but has a blocked bowel as a result of the surgery. The bowel surgeon can't operate as any post op infection would end her life and she is so weak from malnutrition to heal anyway. mum is on a puree diet to avoid complications. 

Mum has been in hospital for six weeks due to an infection but will be allowed home in a couple of days. she is 82 and my dad 84. Mum is an extremely difficult person and suffers from low self esteem which results in a fear of carrying any weight. hence it's a battle to get her to drink and eat. I am the only child and she has banned me from talking to the doctors on her condition. when I try to reason sith her about eating and drinking Ishe causes me of bullying and becomes hysterical  my poor dad is at the hospital by her side for either hours a day trying g desperately to get her to eat and drink but can't do anything right. if he says he is going early to get some rest mum becomes tearful and so he stays. she won't see anyone else except dad. it's like she is trying to kill herself slowly by not taking g nutrition but she tells all the hospital staff she is eating etc and wants to go home. Mum is also refusing any careers and expects dad and myself when not at work to do her  care. Dad is frail and I have FMS and arthritis and battle as it is to work the 60 hours a week that I do. my perception is mum wants to come home not eat or drink and just drift off. They have been married for 60 years my dad is devoted to my mum and I'm watching both of them die my mum for not doing the fundamental thing to prolong her life and my dad from sadness at watching this and overwork. Help x

  • Hi Linda-Anne & welcome to this site. Sorry no-one has replied to u. 

    What a horrific situation u are all in!! My heart goes out to u. 

    Keep posting & stray strong

    take care

    carol x

  • Hello Linda Anne, I am a Linda Ann too. So sorry to hear what you and your parents are going through. You must be worried sick. My 79 year old Dad is being admitted tomorrow for bowel surgery on Thursday. Mum is 75 and like your parents they have been married many years and are devoted. I am so worried about what the future holds for them both. Please keep us posted and let us know how things are. Good luck. Try to keep your chin up. xxxx